oh birdmom you gotta get better! you got to see that grandbaby! mine should be here in the next few weeks! can't wait but then I think it will end up being a bittersweet thing at the same time.

oh dear mikey! I hope they are getting it right now! sounds like you have a great bunch of nurses too. hang in there my friend! still thinking of you guys and praying too!

Poshshorty....I hate it when we go days without a post from you. I'm always hoping for the best but fear for the worst.

My prayers are with everyone out there in our Leaky Boat Crew....keep up the good work...and birdmom...get well soon!

I's been just over 1 month since Lou's passing - Mocha and I clearly feel a void but we're getting stronger each and every day.

We got a dump of snow on Tuesday...16 inches at our house....couldn't get out of the garage...finished clearing the driveway about 1pm....by then the office was closed due to a power outage...just a day off with loads of sore muscles to show for it.

Enjoy each and every day with your loved ones.

Gayle & Mocha

Hi, My name is Jane. I was diagnosed with MDS 2 yrs ago. My hgb was at 8 when I started aranesp and have had shots every 2 wks since and have been at between 9 and 10 with the shots. I am continue to be extremely fatigued..dizzy and just overall run down. Add to this diagnosis..Ive recently become hypoglycymic...and Ive battled chrones disease since the late 80's...yikes...Im a tired girl! Oh...I am 51 yrs old...have never had a live expectancy evaluation...I live each day as it comes and believe that Jesus is with me...through all times!

Jane, welcome to our leaky boat. As always, we're happy to have a new crew member, but sad that it takes MDS to get one.

You sure are suffering a double/triple whammy with your other physical problems.

Do you know what category of MDS you fall into?

Posh, I've been resting a lot to be well enough for the baby trip. I'm better, but not nearly enough to suit me. I hear this nasty cough is going around.

Mike, I'm glad to hear they're taking good care of you.

Gayle, sounds like you & Mocha are on the road to the right place in life.

It's snowing here, a couple of inches so far, but it won't last much longer & it's above freezing, so it should melt fast too.

Thanks for the welcome birdmom...I dont even remember what "category" Im in..Id say early stages. Havent had to have a blood transfusion yet, thank God. I have one doc working on the MDS..one doc for the hypoglycimia and another for the Chrones...I wish I could have a "whole" picture...maybe all of them conferencing. The MDS doc says that its time for another marrow biopsy..but wants to wait to see what could be the cause of my sudden glucose change. They did a sonogram of my pancreous...it looks fine..they did a test on my adrenal gland..that looks fine..so...its a mystery...as is most of my medical conditions! Ive always wanted to be mysterious...but didnt plan on it being this way!
I see that you are dealing with a cough...I hope that clears up for you soon...I'll say a prayer for you. I'll also include all the members of the leaky boat crew. Ive been a "stalker" for awhile..(reading your posts!) and am happy to climb aboard with you all!

Gayle you are so sweet. we are still hanging in. Dad told his wife he knows he doesn't have much longer and now his mind is not so good either. every time the phone rings he is asking if it is his dr office to say they are stopping the transfusions. the dr has hinted that after the grandbaby gets here she will stop them.

Posh, in my mom's last stages her mind began to dwell in the past. I found that sweet & funny, & a blessing that she wasn't suffering at all. Maybe it will work that way for your dad.

Jally & all the crew, I'm finally mending--slowly, but enough to make the grandbaby trip today. I'll be away till Friday.

Hang in there, everyone!

birdmom for some reason I thought it was your dad that had the mds. poor dad looks so bad right now. the dr said today the swelling will continue dispite the lasix.

Posh, yes--it's my dad who had MDS. Mom just sort of died of old age at 86 or so, while Dad was just 75 when he went. He never had treatment & his mind refused to believe that he had the disease. He insisted that he'd had poison slipped in his drink several years before. Sigh!

Jally, there are about 5 categories of MDS. I don't remember the details except the relief of knowing that I'm in one of the "best" categories. Next time you see your oncologist, ask him which one you fit into.

I've only had one BMB & no talk of any more in future. But it sounds like you have peripheral problems, whereas I don't.

And how is everyone else? It was pretty quiet while I was gone visiting my beautiful granddaughter, now 2-1/2 months old. What a treat at my age!

oh ok. I thought there for a bit my memory was worse than I thought lol
congrats on the granddaughter! mine will be here before I know it. Dad is still holding on but I really think his dr is going to stop transfusions after the granddaughter arrives. not sure just yet but she kind of suggested that. good to see you back!

Hi, Just to let you know I'm still here....my husband who is the one with MDS is doing great....his counts are all good except his pletelets and they are liveable....I am not as good....I have been haveing shoulder problems for over a year, they finally did an MRI and found I have two torn tendon, so I'm schuled for surgery on the 18th of March.
I go on a read your posts every few day so I keep track of all of you. So many ups and downs in life....Janet

oh Janet! I am so sorry you are going thru this! good news on your hubby though! take really good care of yourself.

Janet, what have you been doing--hanging from trees? We're happy to hear that your hubby is doing well, & now it's your turn to get this surgery done & behind you.

Sounds like you're going to have a legitimate reason to get out of a lot of housework!

Hey Janet;, Glad to hear your hubby is doiing good. I trhink I have the same problems as you in the shoulder. My blood counts stay down so it makes it hard to do the surgery thing. When I had the port put in they had to give me both blood and 3 units of platelet transfusions just to be safe. I have a BMB at the end of March and we'll see what the ole blasts are doing. They were at 23% last time. If they are the same of preferably lower I'll look into the shoulder fix.

Good luck with yours. Let us know how it goes.

God Bless,
Mike