When I first was DX with MG my Nuero told me to treat a cold or flu agressively, even suggested that I go to urgent care. I haven't faced that problem but probably will some day. Take care.
Will

It is what I did. I went to an urgent care center and they put me on Azithromycin, so hopefully in 5 days I will start to feel better. I just pray it doesn't make the MG worse. Will have to wait and see, just took the first dose. :)

Testinato... I may be mistaken, but I think Azithromycin/Zithromax has a warning on the box against using it for people with MG. Please check this out! Rosie

http://antibiotics.emedtv.com/zithromax/precautions-and-warnings-with-zithromax.html

http://www.fda.gov/safety/medwatch/safetyinformation/safety-relateddruglabelingchanges/ucm133120.htm

Tesinato,
Rosie is correct Azithromycin COULD be very bad for your MG. Please contact your MD ASAP about this medication. I would stop using the medication.

Hope the cold gets better soon and zero complications.

Bruce

I tell you, doctor's are idiots. I told him that I had MG, and asked when he gave me the medicine if it would do anything to my MG. He said that he gave it to immune comprised patients before and had no ill effect. I also had to go to the pharmancy to get it, and asked them the same thing and the pharmaist said that it was safe to take. Now I find that there is warning that clearly states MG people shouldn't take it. No wonder I'm starting to feel a bit weaker. You have to wonder why they are making so much money if they don't know anything. I knew I should of googled it before I took them. Sigh.

Tesinato,

We too often see this mistake with MD's and pharmaist.
Lessen learned is to always have available the list of medications you should never use or only with caution. You can find the list at the following link..http://www.dailystrength.org/groups/myasthenia-gravis-links-and-news/discussions/messages/14144382

The "New links and news" is full of information and documents that you may find helpful to prevent this type of mistake again in the future.

Isn't nice to know that at least you knew to share the information with the group and you got the quick reply from Rosie.

Bruce

Yea, that is why I did share. I figured if someone had a bad reaction to it, you guys would catch it. I already started, and am feeling quite weak, but it is still manageable. It hasn't gotten any worse in the last hour or so, so I'm hoping this is the level it stays at. How long does it normally take for it to fully kick into high gear? Also, due to my allergy with penicillian, what is recommended as an antibotic to replace this?

In general? MG'ers should avoid?
Any cold or flu remedy?

Or any other remedy - of any kind.
That contains high amounts of magnesium.

Many popular cold remedies - contain significant amounts of magnesium.
So do - some brands of stomach and heartburn meds.
Whether it is in liquid form, or tablet.

Yes - check that list of pills & meds -
- that are contra-indicated for MG'ers.
- Ross

MG is so rare a disease that most medical people don't seem to be aware of the do's and don'ts for those of us with it.

My neurologist told me that it made sense to stay out of crowds, away from folks who were sick (although I guess sitting in the waiting room at the clinic must be OK ;-) and to use hand sanitizer often as prednisone knocks down my immune system and of course the MG makes everything worse on its own. She said that something otherwise minor, like a cold, might bring me to the emergency room. Hand to mouth transmission is a big route for germs and viruses, so the hand sanitizer is important.

I wouldnt take antibiotics for a cold/
Ann

Hi. My daughter (who is 18 w generalized MG) gets an increase in her MG symptoms every time she gets a virus. She increases her mestinon dosage and frequency when she gets a virus. (Check with your doc first.) Your doctor might recommend IVIg if your increased symptoms continue. With regard to medication, we always call the neurologist office to check a new medication. We have caught many mistakes this way.

I will have that option come the 16th of next month. I found another dr to go see so hoping she turns out well. The only reason I wanted antibiotics is because I'm having a harder time breathing, and was worried. I get really scared when I have trouble breathing, as I'm sure anyone can imagine. They called in a new one, that I have to go pick up today, but before I buy it, I'm going to google it first and check and make sure that it isn't as severe as the one they gave me. I'm not trusting them this time.

good luck to you, I have had this happen to me last year, even after I gave the doctor the list he called in the wrong med and I did not realize until I had taken one and started having problems.

Annette