Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Tell us about your personal experience with Thymectomy as a treatment: Has it worked? Have you had any issues? Any recommendations or tips?
deleted_user
I had a thymectomy in June of this year. I was very nervous but glad it was done. My surgeon said that I had the biggest thymus he has ever seen. Recovery was not that painful. I still take my meds I really don't feel any better.
SandraEJonas
I am having Robotic surgery in Houston, Texas. This is the best inavasive surgery yet. Approx. 1 hour surgery and 24 to 48 recovery. The name of the machine is called the Di Vinci. Find a thorasic surgeon that has done this procedure. I found one in Houston, Texas and I am from Buffalo, New York. I hope this helps anyone that is considering surgery :)
deleted_user
I just had my tymectomy on the 5th of September. I take a lot less mestinon since, but I'm also not really doing much in a day. I hope it helps in the long term, but so far I am glad I did it. I haven't had any breathing trouble since, didn't even have to go to ICU while I was in the hospital.
SandraEJonas
I just had Robotic surgery for a thymectomy in Houston, Texas. The surgery was one hour with success and I was released the following day. I then flew back home one week after surgery after a check up appoitment with the surgeon. I wish more people would have this inavasive surgery. I do feel an immediate difference but this may vary from person to person!!
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My 6mo twin DD's are EBF and just started rice cereal on the first. Everything has been going fine except this morning one of them had a diaper rash (lots of redness around her anus). I read this as one of the signs of an allergy. BUT I did just buy a different brand diaper yesterday (which they have used randomly before w/no issues). Do you think its the cereal or the diaper? Im ready to start...