Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

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there is so much hope

annkemp
annkemp
It will be 4 years since my major crisis of a hospital stay of weeks and respirator. Yesterday I am happy to say I drove to my neuro alone( 2 hours away) and drove home. Happy to hear I may be moving my visits from every 6 months to once a year.
Treatment of thymectomy, prednisone(from 60 now to 7), and cellcept, and obviously mestinon have been the best for me.
txkiki53
txkiki53
Waaaaa hooo , great news Ann!!!!
judithwilson
judithwilson
That's great Ann. You seem to have a real understanding on how to live with mg. Whenever I overdue it, I hear your voice...rest, rest ,rest
Judith
larissam
larissam
Congrats Ann. Fabulous news. An anniversary gift is in order!
hugs, L
Oceanside1949
Oceanside1949
All-RIGHT!
Sorry you started out from such a bad (serious) place with MG. Very happy for your progress! (I've never had serious episode yet. So many here are much worse-off than myself).
There are many comments that those "worse off" are discouraging. Not to me. When I see others coping with worse, it helps me to stay positive, to "count my blessings" as it were. Now that you've gotten to a better place, it's also encouraging. I guess I look for good news wherever I can find it.
I appreciate your kind and helpful comments to my own questions on this board. Thx.
Joe-Fodor
Joe-Fodor
Congratulations! Down to 7 mg of prednisone!

May cool breezes and calm days find you forever more!

~Joe
deleted_user
deleted_user
Celebrating your health! Good news. There is always hope no matter where we are.
vieve
vieve
That's great, Ann! I'm glad you've made such an improvement. It's good to hold onto hope! (Once-yearly doctor visits...that sounds like it's for someone who's not even sick. :)
deleted_user
deleted_user
I want to congratulate you as well! You give us hope and I love the support here. Everyone is so wonderful to each other and especially me. Thanks so much!
mathewsc3
mathewsc3
That is great so nice to hear
deleted_user
deleted_user
Good for you Ann! I'm very happy for you! :)
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