I'm not a guy (joke), but I have short term memory loss and and I hate it. I notice it more when my MG gets worse. Never thought I would use a daily pill box, but I do now. I have to take pills breakfast, lunch, dinner, and bedtime and with using the it I know whether I have taken my meds or not.

OOOh yea! I can ask someone a question about where they are going, and not 30 seconds later, I have to ask them again. It is worse than my mom. She is always worried that she is getting Alziemers, she is 78 and is doing awesome. I forget so many more things than she does. It makes her sad and happy at the same time. Sad for me happy for her. She wants to be able to take care of me in her old age. LOLOLLOLL

Absolutely have the same thing!!! I used to set an alarm on my phone to take my meds - but I would make my way to the pill bottle and still not know if I took it or not.... So I too went with the massive pill box! The only nice feature is the multicolor tabs which allows me to review colors with my very stubborn almost 2yo who doesn't feel like learning colors! lol! have to see something positive!!!

I did ask my neuro about this. We are at a large academic center and he said none of his MG pts have ever complained about this. I found it odd since it is really obvious to me that I forget even more when my muscles are worse! Again...so glad to know you guys and be able to talk about these things!!!!

Ha! I laugh before I forget why I'm laughing, lol. I find this fairly distressing and I wonder, momsotired, if that is why your neuro (and mine) don't hear of this often from their patients. It's not something I really want to admit to.
Early on I bought a little pill carrier that has three sections in it for my 10am, 2pm and 6pm meds. Every morning I get up and get out my 6am meds in a little pile then fill up my daily pill box. My phone is set to alarm at these times so I am reminded to consult the pill box. What really distresses me is when I go to the pill box and the dose I am there to take is already gone. That can really ruin my day because I will spend hours wondering what happened to those pills. I've been known to search the floor, chairs, car, etc for that "missing" dose. Too bad I don't have a window to peak into my stomach.

Yes!!!! I was thinking about this all night in-fact. I take my medicine then a few minutes later wonder what I took. I swipe in @ the time clock for work then I can't remember if I did it or not. I went to a church conference yesterday for a committee I'm chairing. Every time I was called upon to answer or share I would start to forget the question or topic about 1/2 way into my answer. Funny how you don't forget to wonder if you made a fool out of yourself. I attribute it to just being tired all the time.

Count me in. Every Tuesday morning I fill my pill box (a morning, evening one) with all the pills for the day, except for the Mestinon. Every morning I set the mornings pills out on the napkin, add the Mestinon and put the rest of the days dose in my keychain pill box and my iTouch in my pocket which is set to go off every four hours and has a snooze alarm. At dinner I put out that dose on my napkin and the nighttime pills in my keychain box or I will take the Mestinon and forget the calcium etc. Is it fool proof, NO, but an improvement. My husband does the grocery shopping on Tuesday, so if I am running out of anything, he can pick it up that's why the Tuesday morning routine. I really like the keychain pill box, because it has the advantage of making me keep up with my keys! I think you are right, Cathi. If I am embarrassed to admit all this to this group, how am I ever going to tell this to a doubting neurologist. Took me ages to admit to the double moons. And I hate having to take any kind of medication, but I sure do like feeling better and hope to live longer! b.

I always blame it on the fatigue. As I've said before, that is my worst symptom. When I am tired (and weak) I'm lucky I remember I have pills to take. Since some neurologists don't recognize fatigue as a symptom, its no wonder they don't recognize short term memory issues.

I thought it was just me. I used to have a really good memory. Now it is just so frustrating. Sometimes I just feel foggy. Can't always think clearly.
Kimber

I really thought it was just me.It seems it is mostly ladies replying to this.We usually assume we can handle everything and then some.I think that's where the forgetting pills come into play.I need to get a pill box and am always asking who I am around "Did I take that last pill yet?"

When we do something over and over and over it is hard to know if we took them.
I write down everything on a piece of paper for each day. I write as I take the pill because if I write first I can't remember immediately. I have a pill box for predisone and I write it so I am double checking with that system.
Last night I took mestinon at 4:00. I started feeling bad and kept going to my paper and checking because I thought I nver took it. Thank God I write it down or I would have over dosed.
I have a notebook so I can also keep notes of symptoms.
I am happy with my plan.
Ann

I am right there with the rest of you. The pill box, following routines -Sunday is my refilling day, and phone alarm all help but i still doubt myself. Doing the same thing day after day makes it easy to forget if you did something today or was that yesterday? My Mom is 92 and worries about her memory and some days she is better than me and she is definitely better about her pills. As far as the neuro saying no one every mentioned it before it is probably because the patients forget to tell him about it. That means you have a better memory than his other MG patients!

Wow I can't believe how many have memory loss, I thought it was just me and have been scared to mention it to my neuro. I can turn around from my medication and wonder if I really took them. So very glad I found this group I can see that you all are really going to help me understand what is going on with this MG. have a great day!!!!

Yes! My excellent memory is in trouble now. Long-term memory is still OK. New names are a nightmare. Short-term memory is shot!
--Kerry

I really don't think the pill problem is a memory loss.
I think it is just the fact that we have so many to deal with.
But I will have to abmit I can't leave the stove.....gas ....even for a minute because I will start doing annother task and forget I was cooking. I never leave the stove even for a second it I am home alone. If I am cooking and have to run to the bathroom I tell my husband to come watch the stove because I have forgotten it in the past.
So maybe you all are right.
Stress has always effected my mind.....I do think this disease is a constant state of an additional stress.
Ann

I use a pill container too.

In addition, I find myself trying to do two things at one. Like trying to put toothpaste on the toothbrush and getting my water at the same time.

I also have trouble getting the right words out of my mouth. This really bugs me and I sound like a "babbling idiot" at times.

--Kerry