Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
as i explain in my previous blog, i would keep you all abrest of the progress, i was going to waitt few days before, but i think it is needed to explain and also give some hints how to proceed with it,
because i understood that the second shot woud bring some unseen complications, i made certain that i would minimie their effects,so i did the following, wich i beleive is key.
i keept taken my pyrystigame 30 mgs. minimum dose as allways, DINDT NOT TAKE THA PYRISTYGAMINE, because i told it may interfere with the shot, since sence people seems to react when the shot was applies and there off. dint want to chance it also because of my thallassemia, also sine i have low blood cells count, i felt that i have to take as much precautions as i can.
this is the reason why i mentioned that every body should talk to their neuro.s and clearify the meds and quatities (mgs. ngs. ect) to be taken, i beleive that prevention is the key of succed with the second dose.
now to my experiences yesterday,
i as got the shot as well my wife, i experienced the following, absolutly no pain fron the shot, no dissiness, no weird sensation, waitted 15 minutes before release, whent home and started with our routine. so far all is perfect, but i understood that being the second dose it would have some happenings during the following days necessary for full absortion
our shot was given at 8.20am. after one pm. i started to feel i bit tired on my legs, then i starte to feel like i was in cloud 9. because i felt wath was comming i set and watch tv.
the feelling was on for the all day,so i absolutly make certain that i may aggraviated the situation by overdue anything.
in the evening after eating, we whath some tv. and went to bed at about 11pm.there we started to have certain problems as
heavy light headed,profucious swettings . pain on our body, mostly bones and joints
short sleeping time, principaly my wife, that because being a cancer survivor for the 3rd. time and great for the last 7 yrs. the shot tuck her for a loop
to me, i realized that these symptoms where nothing but a reaction to this second shot, which to my understanting, because of its powerfull effects to combate the cov virus, and being so close the first to the second .
but one need not to worry, it is a normal porcess that we have to endure, the precaution come IF YOU HAVE A COMBINATIONS OF DESEASES AND COMPLICATIONS, there is where you suppose to be carefull and follow precautions.
i understand that it will take about 10 to 15 days to overcome any problems that may arise. but please do not feel that you need to refuse the shots, your life and the life of your loved ones may depend on you to do the right thing. no need to be afraid
teh 17 of this month ill be 83yrs. old, i have lived a full life with all the complications and the joy that was there, and surely i am not afraid to die. because of a vaccine.
i will communicate more of how i feel in the following 10 to 15 days good or bad, but remember we are all different one from the others and will or not differently then me, the only thing that matter is that we can compile data information that maybe relevent to us patients of mg,
best of luck to all, be safe
Andre
Thank you for sharing. Hope you have many good days ahead!
TJ
i beleive tha i can mange without, as i want to get all the info that i can in regard of the different side effects to be able to reallay them to you.
it will take about 7 to 1 days for them to manifest.
also i find out that these effects are to let you know that the vaccine is working,
will send more info. as i will react or what ever
best luck
Andre
Happy Birthday! Hope you have many more.
And thanks for your continued information as it is appreciated!
Here in NW Wisconsin, it is -27F this morning with -50F across the border in northern MN. It has been that way all week, but the coming week is supposed to end with a +30F It has been pretty easy to stay home with those temperatures.
I have been reading that some folks still get Covid after both vaccination shots. The efficacy is good but something like 5-10% of vaccinated folks still may get covid, so even after I get my shots in a few weeks, I plan to keep following the mask and separation guidelines.
Happy Valentine's day to you and your wife and to all of you in the group.
Good Luck
Russ
i thank you for your response and good wishes.
cold is sure taking its tow all over, sorry for you people whom are in the center of this cold belt, just keep safe
i beleive that people can bring the cov after the two vaccination shot to absolute zero but cintinuing to use their mask for at least a period of one month or even maybe
the reson i sm saying this is due to the fact that the full benefit of the vaccines, takes about month or month 1/2. to full effectivness.
and please remember the only pain med recommended is TYLENOL, stay away from aspirines, because they will cause problems, if you dont beleive me, check the net, there is planty of info in that regard( just type cov19 vaccines side effects)
to all a very happy Valentine's day keep safe
Andre
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4860583/
I’m glad you and your wife got your vaccinations. My son who works in a hospital Covid floor as a nurse and floor manager is now fully vaccinated. He is 28 and was sick for two days with the vaccine. So it is not uncommon. He had full blown fever body aches and pretty much couldn’t move off the couch. They give it to staff when they have the next day off knowing that it can be rough for 1-2 days.
I have not gotten one I am eligible but unable to find one in néw Jersey. I go to Néw York Presbyterian for my medical care in NYC but they will not give me one there because I dont live in néw york. I feel that’s a bit ridiculous.
thank for your commands they are really appreciatedsorry that you are still unable to get vaccinated, one can thing , since my son is a nurse i would get as famaly, but unfortunatly that doesnt work, hope you be able to get yours soon.
your son was lucky to only have a couple day of symptoms, , thanks he is young as they are able to absorb and respond faster.
this situation has be a disaster from day one, but eventually it will get better, hopefully as the new president specified.
now i am take the moment to upgrade my symptoms
yesterday in the afternoon i started to feel a bit more like me
the swet, chills dissapear totaly
the skelatine pains are about 75% gone,
the only lingerin item left are the muscles with the fatigue, those are at this
time pernicious as i try to go for a walk, reach only the side walk, and was so week i had to turn back.
because of that i took what is very important in my case, the oxigen tester, which normaly should give a reading of 94 to 96 normal
minw waried beetwen 86 and 88, ways to low, this was do to my thallassemia
hopefully should become normal again in about 5 days.
so i beleive that will complete the symptoms from the second shot, nothing to worry to much. before i forget to mention, tylenol as been a great help
be well, be safe and good luck to all
Andre
You are all over the place about the test because you say you use it. I called it PCR before and you corrected me saying it is RT PCR and your post is here showing that. Now a posted article study that refutes what you claim. You are not doing Covid tests, you are using it for research. RT PCR must be done to convert from RNA to DNA because that is the PCR test. It is DNA. Call it whatever you want, but I am not incorrect. I have posted video of Fauci calling out that cycle threshold over 35 is pointless. You can find a fragment of anything when cycling these tests up and there MUST be a standard. You cannot get someone sick from nothing. Medical professionals think they know it all. Sad part is you will not debate me, you just live to post and try to correct me to make me look bad. I am happy to post even more links to show...you are incorrect about cycle thresholds being a problem.
https://www.who.int/news/item/20-01-2021-who-information-notice-for-ivd-users-2020-05
"The maximum reasonably reliable Ct value is 30 cycles. Above a Ct of 35 cycles, rapidly increasing numbers of false positives must be expected "
"PCR data evaluated as positive after a Ct value of 35 cycles are completely unreliable."
"The fact that these PCR products have not been validated at molecular level is another striking error of the protocol, making any test based upon it useless as a specific diagnostic tool to identify the SARS-CoV-2 virus."
https://cormandrostenreview.com/report/
Of course I can more info on this topic or show video of the inventor of PCR saying this and video of Dr Fauci saying you should not go over 35, I would not lie to people and it is too bad that people are not open to debate when they are proven to be incorrect. All I want to do is share information.
Here is a court ruling the PCR test is bogus
https://www.theportugalnews.com/news/2020-11-27/covid-pcr-test-reliability-doubtful-portugal-judges/56962
So much info out there...
TJ
as i mentioned before the most pernicious draw back has been the fatigue imposed upon the shot. it realy is a pain on the neck. relentless to the max.
very time i took the steps tp go wor a walk as i allways have done, was unable to go farther than the side walk of the house week to no aveil also my Co was as low to 70.(normal ia 94-96)
this last couples of day the vaccine as relaxed a bit the fatigue but it is minimum, that means the i will have to play it by hear.
so to all when you take the second shot, do not despair, these are just a small set-back to all activities, but the end result will be good..
best of luck to all
Andre
- Nan
Thanks for your response, hope that you can get your shots for the good of your family and friends.
nobody escapes the side effects from the second shot, it is to expect as these 2 shot to my point of view are to close to each the other, the best would have being 3 to 4 weeks intervals, but lets live that to the scientist
the reason i say that is do to the fact that our inmune system is compromised and week
also i forgot in my post that on me the fatigue and weekness are only on from my lower back to my calfs. no week ness what so ever on my upper torso and arms., all that i beleive is do to my tallasssenia, on with my oxigen level when to low.
for all you mg,ers, i dont think it will affect you the same way, most of you should be over from 5 to 10 days
best of luck to all, and again nano Thanks, the best to you and your husband
Andre
I had slight discomfort from the 1st shot and slightly more after the second along with some tiredness. But, all in all, nothing bothersome. I'm 80 years old and understand older people suffer less side effects from the vaccine. I encourage everyone to take the vaccine, especially since you only need one shot with the J&J vaccine.