Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Does anyone else have just ocular myasthenia gravis?? If so what treatments have helped? does the double vision/droppy lids ever go away?
Changes in color or visual field may be due to ocular migraine which can accompany ocular MG. I have found that wearing an eye patch over most affected eye is useful when double vision occurs when I’m out and about. Placing ice pack over eyes quickly relieves double vision for varying amounts of time. Resting eyelids is the key. Eye strain from computers, reading and other screens tend to induce double vision when muscles are weak so avoid as much as possible. Until I had my ocular symptoms under better control I had to forego watching TV and movie screens (closed my eyes and just listened). Good luck and God bless.
Double vision was my first symptom of MG, but over the next month, I got many more including difficulty chewing, talking, breathing, etc.
My double vision went away after a few months of MG treatment (prednisone). I dealt with double vision by using an eye patch so one eye was blocked but as another symptom of MG for me was a drooping eyelid, I learned to just let one eye close. Using just one eye seemed to me to be about 1/3 of what 2 eyes did, but after a few weeks, I got used to using one eye. I traded off on which eye I used.
Good Luck
Russ