I call that fatigue or weakness. When I am fatigued, I also have a lot of brain fog. I like to describe the fatigue as just recovering from having the flu for a week, just after you start to feel better, but are still very weak.

My HELP: Spirutein. It's a protein powder that I mix with milk/almond milk. It is loaded with vitamins, minerals and enzymes. Last Saturday, I skipped my second drink, and I did not eat well, because we were running errands all day. The next day-I felt awful. I was so weak and had extreme brain fog.

Also making sure you drink a lot of water will help you fell better over all.

You are right this is a different symptom than muscle weakness.

I am not saying this is a cure, it just helps me feel a lot better.

Good luck to you. I hope you have a good day soon.

Also eating a clean diet with lots of fruits, veggies and chicken/fish, no gluten, no dairy and no sugar, and no red meat really help me to feel better. I had fried shrimp not long ago and it tasted terrible. Needless to say, I did not eat it all.

I made changes one at a time and I "treat" myself at times, but I try to stick to my "diet".

I hope this helps.

Take a nap.

On some days the exhaustion hits me like a truck. Never used to be a napper ; am now. It is a big part of MG, but a lot of physicians think that MG is strictly the "fatigueable weakness", or "ptosis". In reality, MG is a lot more than that.

Barbel is right. A healthy diet has changed my life w/ MG. Still have the disease, but the exhaustion that I USED to have has gotten much better since I've been eating more fruits, vegetables, and fish.

Take Care.

Thanks for the feedback, true, I never was a napper, would try, but never could, now I love my occasional nap.

Hi,
Welcome to the group. Sorry to hear you are having problems.

I had sleep apnea along with MG. When I started using a CPAP machine, some of the tiredness went away. Most of my MG was not overall fatigue, just inability to do much without almost immediately getting weak and out of breath.

If your naps leave you refreshed, probably not sleep apnea.

Since MG is often accompanied by other medical conditions, it is good to talk to your doctor before self-diagnosing and self-treating with supplements and diet changes Check your medicine side effects too.

Good luck

Sleep apnea made my husband exhausted.
Yes mg can make me exhausted
And I can't believe the difference a good diet makes.
Some days I really think mg is caused by wrong foods.

Klinker, it was clear to me that this is NOT your first rodeo. I read your other post under the Successful Thymectomy thread ; congratulations on your decades of remission !!

I'm guessing RHanson's comments about "self-diagnosing" and "self-treating" did not take into consideration that you are certainly NOT a newbie, and have been around the MG block once or twice by now!

I hope none of us sounded preachy. Sounds like you are a thymectomy success story. The sleep apnea comments are spot-on, but my only need for a cpap machine was due to active MG.

But, we do change as we get older. Like it was said here, keep your Doctor(s) in the loop.

Any possibility your hormones are changing? I'm not a female, but I've heard that hormonal changes could indeed cause some tiredness.

Welcome!!!! Chris.

Yes, I am definetly not a newbie to MG-yes, very much a success story because of the removal of my Thymus gland. I don't think people actually see results as fast as I did. There are tons of reasons, besides MG that make me tired. Female age 54 and all that goes with that change, Low Thyroid (take meds), and Colitus. I have 3 autoimmune diseases, did you know that if you get one autoimune, your chances are high that you will get more? The day I was really tired I think I was fighting an illness, woke up the next day with swollen glands, sore throat-that would explain why I was so tired the day before-I work at a Elementary School and I act as the school nurse when kiddies are sick so I am exposed to everything. I didn't mean to complain about my MG and tiredness, I guess I just wanted other people with MG to tell me that they get tired (sleepy) and not just muscle weakness. Everyone have a good weekend!!

I totally have days of complete exhaustion (bone aching tiredness) - kinda like in the exhaustion I remember from when I was in my first trimester of pregnancy. I also believe I have adrenal fatigue - though doctors often deny that it exists. I get tired from chocolate and coffee; drag my but all day, then finally feel like a human being at night when i should go to sleep. I started taking Ubiquinol (a bio-available version of co-enzyme Q10) and that helped a bit. I go through periods of clean eating and I usually feel better. Last year i was religiously gluten-free for more than 6 months and I had a lot more energy. I've been so stressed and busy that I have been eating like crap since February.

Organic1der,

You are describing my symptoms perfectly. I wake up in the morning and the only thing on my mind is when can I get more rest/sleep because of the utter fatigue. This plays constantly in jy mind regsrdless of what i'm doing. The only time of day I feel "normal"or energized is in the evening. I've been thinking adrenal fatigue but can't find a doctor who is interested in pursuing this. I'd like to know if you make any progress in this area..

Other than this I am experiencing very mild MG symptoms. But the need for sleep is unreal.

Barbara

Barbara

Exactly how I am right now after a busy day yesterday.

My doctor told me that I needed to lose weight. That is why I am tried . She also told me that fatigue and tiredness are two different things.

Hi Barbara - i don't know where you live, but i live in Canada. Our medical system, while very good in many ways (I am thankful for it!) is often archaic in my opinion. Most Canadian doctors won't accept that adrenal fatigue exists - just like it is only recent that they actually agree that Lyme disease exists! When I first started feeling tired (crashing) from drinking coffee and eating chocolate, I googled it and found lots of adrenal fatigue information. I also went to a naturopath and they DO accept AF as a diagnosis, and I did some saliva tests that checked saliva levels of different hormones including cortisol. The test it showed extremely low levels of cortisol during the day and it went up to normal at night.

I've been on Mestion and Mestinon Timespan for the past year without a diagnosis of MG, but I am taking 1 30mg tablet every 1.5-2.5 hours with a Timespan at night. I react strongly to the medication where everyone around me notices whether I am on or off the medication before I notice. My doctor started me on 10mg Adderall once per day 1.5 months ago, and the combination of Mestinon and Adderall almost make me appear to be my old normal self. I had to increase my Adderall dosage to include a .5mg kicker in the afternoon, but so far so good. Adderall might be a possible solution?

I agree with the med check. I'm on Imuran and my doctor say it's a side affect