Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

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krbunn 12/27/2014

I hope everyone had a safe, healthy, and merry Christmas. I have had several good weeks after my crisis in August. But, as you all know the MG antibodies build back. I have contacted my neuro and will be going back into Vanderbilt in early January for 5 more days of plasma exchange. After that I will begin cytoxan chemo again.

Haven't written much lately, but I have been keeping up with your posts.

Thanks for your prayers and support everyone.

deleted_user 12/27/2014

Kerry nice to hear from you..Hope you and your family had nice Xmas and have a Happy New year....Glad to hear you had some good weeks before having to go back again for more treatment...I send prayers your way and hope all goes well and you can have MANY good weeks ahead......I know the roller coaster of MG! We all go thru it and support you all the way....Take care and keep us posted when you can......Hugs Jacki

DebbieF777 12/27/2014

Merry Christmas. Good to hear you've been more stable. Prayers said for your Vanderbilt trip. I do love Plasmapharesis, just wish I didn't have to be inpatient for it.

Rhanson 12/27/2014

Merry Christmas. Hope 2015 turns out to be great for you!
Good Luck

HappyGuy007 12/27/2014

Merry Christmas, and Happy New Year to you, and yours. HG007 p.s. Dr. Bunn, have you ever been tested for Leaky Gut Syndrome? LGS leads to an ongoing heightened state of arousal of our immune system. You know what that means for us .....more of the offending antibodies.

carolela 12/28/2014

Merry Christmas! Hope you have a health 2015!!

DEEW4 12/29/2014

Praying for healing. Stay strong.
Dee

limpnoodle 12/29/2014

Merry Christmas to you, too, Kerry. I think I'm in the same boat as you. I'm going to start a round of plasmapheresis tomorrow. I am so grateful that I have this option.
I will also be getting a series of five treatments, but on an every other day schedule.
Are yours back to back, or every other day?
I also have another round of Rituxan in the works, so looking forward to some major improvement.
Hope and pray that you see some improvement in your condition and it leads to a majorly good new year!

krbunn 01/13/2015

I am home from the hospital and doing well. Started cytoxan again. 1.35 grams. Got that "yucky" feeling, but doing okay.

Thanks again everyone for your prayers and support. You can read about this at krbunn.blogspot.com.

Dealmaker 01/13/2015

Great you're home Kurt. Your blog link is incorrect.

Hope you're better soon.

DM

angepugin 01/13/2015

Happy and healthier New Year to you Kerry! Glad you have the exchanges behind you and have some better days to look forward too. Don't I know that yucky feeling! Urgh!! At least it is mostly worth it though hey! Hang in there. Thoughts
Ange

krbunn 01/13/2015

On the blogspot link. Don't put the last period. Sorry.

krbunn.blogspot.com

cgreens 01/17/2015

Hi Kerry,

Thanks for the update. So glad to hearing you are alright.

You can always depend on the group here. We will check out your blog.

Best wishes for peace,
TJ

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