This may be kind of long, but I've been dealing with weird symptoms for about 16 years. It stated when I was 18 and went through a period of time where I couldn't hold my arms above my head long enough to put my hair in a ponytail. Being 18, I ignored it and about I month or so later my arms worked normal again.
Mainly, the issues that have plagued me for the past 16 years are weakness in my facial muscles. I can't hold a smile for more than a few seconds. Double vision seems to come only when I'm really stressed out.
Recently, I've noticed my arms starting to get weak with certain motions or repetitive actions. I figured it was time to talk to a doctor. I got the referral and saw a neurologist last week. I'm highly unimpressed with him. He laughed at me for most of the 10 minutes he was in the room with me. Couldn't seem to believe i waited so long to get medical intervention.
He didn't ask me many questions or tell me what the steps would be. He prescribed me mestonin without any testing or definitive diagnosis. I'm very hesitant to medicate.
Once the doc left, the nurse brought me some paperwork with a long list of tests to get completed before my next appt in 3 months. He wants me to get an MRI of my head and an eeg. Neither of which seem to be the proper diagnostic tests for MG.
Aside from that, he's also doing tons of blood work. Many looking for MG markers in the blood. But also, a 5 hour glucose test and checking my a1c. I am not diabetic. I can't wrap my head around why he's doing these things.
I guess I'm just looking for any advice that can be offered. Thanks!
@Russ In MG, unlike most neurological diseases is reversible. Our muscle receptors will regrow almost 100% rapidly ( some in 24 hours and some more slowly) when the attack is removed by suppressing the production of the bad antibodies. So the prognosis is generally very good for us to go on to lead decent and long lives with treatment. Do you mind if I ask what makes you say that? I would...
Hi guys,I decided to join the forum for some more information.My mom has been diagnosed with probable seronegative myasthenia gravis and/or ALS. She is a complicated case, and has some things that are atypical for ALS. The complaints started in April 2016 and have gotten worse.Mestinon helped in the beginning and still helps, without it she doesn't have any strength in the upper arms. She is on...