grecogirl

Activity

• Myasthenia Gravis
  

  Nebulizers

  Posted by: grecogirl

  Last Reply: trinity419 09/08/2020

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  Do any of you use a nebulizer to help with breathing? 

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: grecogirl

  Posted: 02/21/2020

  grecogirl commented on the discussion Solaris Treatment.

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: grecogirl

  Posted: 02/18/2020

  grecogirl commented on the discussion Solaris Treatment.

• Myasthenia Gravis
  

  Solaris Treatment

  Posted by: grecogirl

  Last Reply: JasonJMedrano 02/27/2020

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  Has anyone heard of this new treatment?  Is anyone using it.  I just briefly looked it up on line.  I would like to talk to my neurologist about it.

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: grecogirl

  Posted: 05/02/2019

  grecogirl commented on the discussion Imuran, Cellcept, Prednisone.

• Myasthenia Gravis
  

  Imuran, Cellcept, Prednisone

  Posted by: grecogirl

  Last Reply: PeterL 05/14/2019

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  I am on Prednisone and have been for 4 years; up and down with my dosage.  My neuro wanted to put me on Imuran a couple of years ago, but I declined after I read about the kidney damage it can do.  He told me I had to have a blood test once a month on Imuran.  Now this post about Cellcept.  I think I will make an appointment with my neurologist to discuss this.  I know all three of these medications have side effects and are detrimental to us, but for the majority of MGers what, in your...

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: grecogirl

  Posted: 04/30/2019

  grecogirl commented on the discussion need advice on CellCept.

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: grecogirl

  Posted: 04/30/2019

  grecogirl commented on the discussion need advice on CellCept.

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: grecogirl

  Posted: 04/25/2019

  grecogirl commented on the discussion Arm weakness.

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: grecogirl

  Posted: 04/21/2019

  grecogirl commented on the discussion Arm weakness.

• Myasthenia Gravis
  

  Arm weakness

  Posted by: grecogirl

  Last Reply: grecogirl 04/25/2019

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  The day after Thanksgiving I broke my elbow.  Two months later I got out of the long-arm cast.  My arm was very sore and stiff and as time went on, my arm felt weak.  It has been 5 months now and my arm is still weak.  Sometimes, I can't even lift it up over my head.  I am wondering if the MG is preventing my muscles to gain strength?  Any thoughts on this?  TIA.

• Myasthenia Gravis
  

  Peptides

  Posted by: grecogirl

  Last Reply: fihghter 04/16/2019

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  Anyone taking peptides? I started taking Hup-A instead of Mestinon and so far so good as well as tumeric.  I am still taking the prednisone 10 mg a day and then 5 mg a day, occasionally skipping a day.  Any thoughts on Peptides as a supplement.

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: grecogirl

  Posted: 03/25/2019

  grecogirl commented on the discussion Mestinon and Prednisone.

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: grecogirl

  Posted: 03/25/2019

  grecogirl commented on the discussion Mestinon and Prednisone.

• Myasthenia Gravis
  

  Mestinon and Prednisone

  Posted by: grecogirl

  Last Reply: PeterL 03/27/2019

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  How do you take your Mestinon with prednisone?  Do you take the Mestinon first and then the prednisone in the morning.  I usually take the Mestinon first and then take the prednisone maybe an hour later.