I am still not seeing very good results from going on the prednisone at 40 mg a day. It has been two weeks now and I am still taking the Mestinon and it helps some, but I am kind of up and down. I am going to wait another two weeks before going back to the neuro as I know it can take a while for things to change, but I am a bit discouraged, as I feel I am not really feeling that good, not like before. I have times when I feel a bit better, but most of the time, I just want to sit down. No energy, sort of an all over weakness, some lightheadedness, and very depressed and discouraged as I am afraid, I am not getting better or going to get better and perhaps getting worse. It has been 2 years since this started for me and I have posted on and off and have received some very good advice. I am wondering if the neuro will want me to go on Cellcept like he did a year ago and if so, what can one expect from that?
Hi, I know it’s normal for diarrhea to be extreme with taking pyridostigmine, but has anyone ever experienced the opposite? My father has had diarrhea since having colon surgery 20 years ago. Recently diagnosed with MG, he now has firmer and less frequent stools. I’m curious if anyone else has experienced anything similar? TIA!
My husband was diagnosed with myasthenia gravis in 2016. He is extremely weak now. Takes 60 mg. Pyro 3 times a day. Trying to get in to see Dr., but can’t get in until middle of August. He was diagnosed also with dementia just after that at Center for Senior health in Akron. After much urging by family Dr. We went to a psychologist and after much testing he said he does not have dementia,...