Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Lorraine
To sum up I would say that people with muscle wakness would be better off on BIPAP than CPAP in general even when there is obstructive apnoea with the weakness because the expiratory pressure can be set to stop obstruction as well. The BIPAP is also alot more expensive than the CPAP though so it depends what component is worst.
I sleep on a BIPAP machine every night and it has helped to give my muscles a good rest. During crisis I have been in ICU and saved from intubation with increased pressure support on my BIPAP. There are times when the support is not enough and then I have needed intubation but it has minimised those times for me thankfully!
Hope this helps.
Hugs
Ange
With MG I have had to boost the pressure some to adjust for the breathing weakness overnight. The simplest test of if it is working is the overnight take-home finger-clip oximeter that measures the amount of oxygen in the blood. I think every MG person with breathing problems should have this kind of test--much much less expensive than a full blown overnight sleep study and will indicate if you should have an overnight apnea study.
A basic discussion of bipap/cpap can be found at http://bipapvscpap.net/ I find the cpap helpful when I am feeling breathing fatigue--it helps and seems to be comforting too that I have it and that I know it will ease my problems when needed. You can buy a used one on Craig's list for about $300--and of course insurances and medicare cover them if you are diagnosed with sleep apnea.
During my recent MG crisis my doctor did not want to discharge me home without a BiPAP. She was able to use my pulmonary distress and different pulmonary tests to justify the switch.
Nothing to add to Ange's explanation on the difference...good job Ange. I do find a difference between the CPAP and BiPAP. Plus I also feel better having the BiPAP available during the day if I need it.
Bruce