Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
This topic is based on other posts and I feel the need to share what on my mind. I don't expect this post to win any new friends but here it is..
Inflammation plays a huge part in our health including MG. Prednisone is simply treating inflammatory conditions in your body.
Being overweight is making inflammation worse and will only exacerbate MG (per my M.D.). I implore you to ready about inflammation and how to reduce it through diet and exercise (even yoga...something).
Stop relying solely on pharmaceuticals and your doctor.
Take your health seriously and be in control instead of letting it take over.
YES, your diet and lifestyle affects MG.
Sadly others have posted here years ago and in the past that went from having Generalized MG to running ultra marathons and getting MG in remission by diet and lifestyle changes. But their advise and encouragement was not welcomed. I feed off those stories of triumph and those that overcame MG through diet and lifestyles changes.
Inflammation is killing us and if you continue to ignore it, you will only get worse. Here are some links to read.
I do not endorse or recommend any products or links on these sites. Just read the information about inflammation.
http://www.arizonaadvancedmedicine.com/articles/inflammation_francis.html
http://www.ncsf.org/enew/articles/articles-obesityandinflammation.aspx
http://www.ncbi.nlm.nih.gov/pubmed/19149749
http://chriskresser.com/how-inflammation-makes-you-fat-and-diabetic-and-vice-versa/
http://drhyman.com/blog/2010/07/30/how-to-stop-attacking-yourself-9-steps-to-heal-autoimmune-disease/#close
http://articles.mercola.com/sites/articles/archive/2013/03/07/inflammation-triggers-disease-symptoms.aspx
Inflammation plays a huge part in our health including MG. Prednisone is simply treating inflammatory conditions in your body.
Being overweight is making inflammation worse and will only exacerbate MG (per my M.D.). I implore you to ready about inflammation and how to reduce it through diet and exercise (even yoga...something).
Stop relying solely on pharmaceuticals and your doctor.
Take your health seriously and be in control instead of letting it take over.
YES, your diet and lifestyle affects MG.
Sadly others have posted here years ago and in the past that went from having Generalized MG to running ultra marathons and getting MG in remission by diet and lifestyle changes. But their advise and encouragement was not welcomed. I feed off those stories of triumph and those that overcame MG through diet and lifestyles changes.
Inflammation is killing us and if you continue to ignore it, you will only get worse. Here are some links to read.
I do not endorse or recommend any products or links on these sites. Just read the information about inflammation.
http://www.arizonaadvancedmedicine.com/articles/inflammation_francis.html
http://www.ncsf.org/enew/articles/articles-obesityandinflammation.aspx
http://www.ncbi.nlm.nih.gov/pubmed/19149749
http://chriskresser.com/how-inflammation-makes-you-fat-and-diabetic-and-vice-versa/
http://drhyman.com/blog/2010/07/30/how-to-stop-attacking-yourself-9-steps-to-heal-autoimmune-disease/#close
http://articles.mercola.com/sites/articles/archive/2013/03/07/inflammation-triggers-disease-symptoms.aspx
Listen to your doctor. Eat correctly, Exercise. Ignore Dealmaker!
Dee
Modern medicine certainly has it's place, but the American food industry has been poisoning us for decades.
Read, "The China Study".
I must also admit that I have not looked at any of Dealmaker's links, and was only commenting on his original post, which I agree with.
Again, read "The China Study".
Take Care. Chris.
Encouragement
I struggle so much with loosing weight.
I lost 20 at first but it is so hard. I get so Hungary.
I am determined to loose 2 lbs a week now because I want to get better.
I appreciate anything anyone says.
What I do with the info is my decision .
I do know the worse I eat the worse I feel.
I am glad to hear a doctor says being over weight agrevates it. I neede to hear that.
If lifting my heavy purse causes me aggravation I know the extra 50 lbs I carry sure isn't helping.
"The Obstacle is the Way"
To Dee: There's plenty on PubMed and other sites stating the same thing.. medical research!! The "quack" doctors are referring to the same medical studies about inflammation.
I agree read the "China Study".
If you're too lazy to research this yourself, then don't complain or post. I'm only trying to encourage others to take of yourself.
To Ann: God Bless you for trying and be vulnerable.
- Point: Foods cause inflammation. Obesity perpetuates inflammation... Inflammation is a root source of MG and most (if not all) diseases.
Love or hate me, I could care less. I'm here to share my experience and knowledge with having MG.
Meds cannot cure MG we know that and there are some that have successfully used diet and lifestyle changes to overcome MG.
Either you can sit and take your pharm drugs or make some life changes and fight.
Dealmaker
Not being a critic...only wanting info
and we need to always support each other in kind ways.
I do know
when I eat well I do better.
I would do anything to be off prednisone and cellcept.
"The chronic inflammation of MG causes several changes in the structure of the Neuromuscular Junction which also inhibit transmission and contribute to weakness. These include flattening out of the junctional folds, spreading out of AChR and Acetylcholinesterase, a 66% decrease in number of AChR, and an increased junctional gap."
Source: https://medicine.yale.edu/neurology/patients/neuromuscular/mg.aspx
Predinsone's function is to reduce inflammation causing a lot of our symptoms. I'll contact you through a personal message with more information.
DM
http://www.nytimes.com/2015/04/21/upshot/simple-rules-for-healthy-eating.html?hp&action=click&pgtype=Homepage&module=mini-moth&region=top-stories-below&WT.nav=top-stories-below&_r=0
I spent most of my life doing digestive disease research and I think the rules above are pretty good.
Wellness,
http://www.medicalnewstoday.com/articles/292200.php
The researchers found that, compared with adults who had a healthy BMI (between 20-25 kg/m2), those who were underweight - defined in this study as a BMI less than 20 kg/m2 - during middle age were 34% more likely to be diagnosed with dementia. This increased risk remained for 15 years after adults' underweight status was recorded.
The researchers also found that middle-aged adults' risk of dementia steadily reduced as their BMI increased. Compared with adults who had a healthy BMI, those who were severely obese (BMI greater than 40 kg/m2) were 29% less likely to develop dementia.
(Skinnies are 63% more likely to have dementia as they age that the fatties)
Personally I am more worried about my life ending in Alzheimers than just about anything else -- when you lose your memory, you are no longer you. So i suppose i should attempt to bulk up my BMI ASAP. I wonder what diet is best for promoting obesity?
Rhanson, I've read a lot of studies on dementia and Alzheimer's and the link may be a low-fat diet (which I'm not on.. I LOVE BACON & AVACADO!) I agree..it's a bad way to leave this earth. My first experience with Alzheimer's once a girlfriend's grandmother. She was very sophisticated and beautiful in the past, then I saw her with A and she had mind of a 5 year old... singing "Ring around the rosies..." So disturbing.
Personally, I maintain a high-protein, high fat diet with minimum carbs to maintain muscle mass, strength and reduce inflammation. My brain is happy on fat!
I enjoy both of your posts. Thank you
DM