I have been reading up on Imuran and Cellcept as possible treatment for MG. My neuro had suggested it, but I am hesitant due to the side effects and from what I have read, it is not a guarantee, all you can do it try it. Imuran seems to be a bit more deadly than Cellcept and I did try Cellcept but only took it 3 days. The neuro said it takes about 6 months to see results. I am still about the same with my symptoms, no better, no worse, so I am wondering if I should just keep on the Prednisone and Mestinon and give it more time. It will be a month the 15th of this month that I have been on the increased dose. I also wonder if this is where I will be with this from now on, no matter what I take. I almost feel like if I could get back to a lower dose of Prednisone and even if I still feel the way I do, just live with it, before subjecting myself to other medications that might have a more harmful effect on me than the disease.
Hi I am writing on behalf of my 79 year old mother who has been newly diagnosed. She is on Mestinon but having terrible diarrehea and an upset stomack. Anyone had similar symptoms? Decreasing the dosage to see if those side effects disappear.Any suggestions from those of you who deal with this condition would be appreciated greatly!
I found out that we MGers are eligible to donate our organs such as kidneys, pancreas, liver, heart, lung, and intestines after death. There is no age limit. However, at least in Pennsylvania (where I live) transplant centers are presently not permitted to use our tissues such as corneas or bones. I am thrilled and have already registered myself as an organ donor. Here's the information and...