Hi everyone. I am being worked up for this. I have had difficulty swallowing for a couple of years. I had a thyroid nodule that we thought was the cause, so I had surgery to remove it. Only slight improvement. I had to have a 3 level discectomy with fusion in January of this year. I was home 1 week, when my swallowing got worse. I went back to ER where they admitted me. They did CT scan of neck which showed a collection of fluid, so they admitted me for steroid treatment. I was not able to swallow at all, so they gave me nutrition through an NG tube. Was there 11 days. I was getting weaker by the day and used a walker to get around. After I got home, I noticed my left eyelid was droopy. My legs felt heavy and weak. Went to PT but plateaued so I was discharged. Got in to see neurologist. All my blood tests and emg negative. Most days I feel like a bobble head doll, and I feel heavy and weak. Out of breath with everything I do. Ended up in ER with shortness of breath, but all the tests were negative that they did. I am so exhausted all the time. Feel a bit better when I get up, but after showering and getting ready for work, my symptoms get worse. I also feel like my hands and legs are buzzing, like I have my hand on a broken speaker. Also have a tremor and sometimes I get muscle twitches when I am tired. My Neuro is sending to Boston to see neuromuscular specialist Dr. Anthony Amato, but my appointment is not until July. Has anyone else had an experience with being diagnosed? I am so tired of feeling like this.