Hi,
I definitely met some MG sufferers that did not present with ocular symptoms. Did they test all the antibodies yet? electromuscular tests (I think that's the word in English)... If there is no identifyable antibodies hinting at MG, there are unfortunately a myriad of other disorders one could have, presenting with muscular weakness.
I'm sorry, there is such trouble with your diagnosis. :(

Thanks for your reply. Yes I have been tested for antibodies and had the electromuscular tests done...all normal. I am exhausted.....

The discussion of alternative therapies has been on older posts -- so you could search to find them. I can't remember anyone finding much success with anything other than the standard type treatments.
Most of the things that people suggest are to "improve" or stimulate the immune system. We have the opposite need, to dampen it.
Good Luck

My neurologist has said that Mestinon and prednisone should kick in right away and I should have seen immediate improvement. I didn't, only some improvement. I am scheduled for IVIG next as my breathing can be poor.

Hello fellow senior. My MG was difficult to diagnose. I did at first have a droopy eye, but no muscle weakness except for speaking and swallowing. The doctors could just not get past the fact that there was no weakness in my arms and legs. I did have a bit of an issue with my neck, but they took no notice of that. I've been through all that you mentioned, but no real eye issues. I will tell you that I researched MG and found a small study that showed statins could be associated with MG. I am not recommending or making any conclusive statement here. However, I stopped taking the 80mg tablet 3 months ago (my neuro seemed pleased with my decision). Now 8 months after diagnosis, during which I have been on Mestinon, Prednisone, Immuran, and through IVIG as well as plasma pheresis I am now experiencing almost no issues. I have not taken Mestinon in over 3 weeks. Note, I am not "cured" as I still take the steroid and immune suppressant. By the way, my primary care physician tested me for lipids and reported that my results are now normal and I should not need tested again for 3 years.

Mestinon should kick in about 30 minutes after you take the pill. Sometimes we need larger doses. I found 60mg every 3 of hours was about right at my worst (and if I really needed to be active, I took 90mg per dose). 120 was too high and made me jittery.
Prednisone, at least for most of us, unless it is quite high dose takes at least many weeks--I started at 20 and about 3 months later at 60/day finally felt like it was working -- then I could taper down greatly (slowly).
Good Luck

Hi, i am to be shortly diagnosed with no double vision, only eye droop and severe muscle weakness/cramps.. among all the other symptoms as well. I would ask your physician first, but personally I take a small amount of silver shield a day as a natural antibiotic to help prevent UTI'S, as they make me much worse. I also take a probiotic, as you should with all antibiotics. I use essential oils of marjoram, rosemary, peppermint (to help the smell), lemongrass and basil.. 11 drops of each to 1/4 cup of a carrier oil (almond oil, sunflower oil,coconut oil).. any one of those. I have to use gloves to rub it on my legs for my severe leg cramps/pain/spasms because of how bad it smells... but it is amazing!! Have used it every night with an ice pack for the last week due to severe pain. It's the only way I can get some good rest. (Take the ice packs off before you fall asleep though..) hope this helps! You can get the supplements and oils thru a holistic store and/or I get my oils from Young Living.