Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
I am having problems with my heart rate. I can feel it when I lay down at night and at times during the day. I am also a bit short of breath on exertion. I am taking 5 mg of Prednisone every day, and I am trying to skip one day a week and then hopefully skip two days a week and so on, to see if I can get off of it. I have tried to stop taking it in the past only to have flares. I got down to 2.5 mg but had a flare and went back up to 40 mg (gradually) and then tapered back down. I know I just cannot stop, but sometimes this thing with my heartbeat worries me. I don't have any pain, just this thudding in my chest. It is like I am anxious. I probably need to go see my doctor and go from there, but just wondered if anyone else has experienced this.
Maybe you could try my strategy for when something starts sounding bad in my car -- I turn up the radio so I don't hear it ;-)
Good Luck
Russ
sorry to hear about this problem, for safety measure i would ask my neuro to have a cardiologist examine you, but also i would like to be aware that untill you learn to control your emotions, stress, excertion, fatigue as they are the worst enemy of mg. they will send you on a wild roller coast ride, hard to understand and control, but you can do it.
also i would like you to know that generalay hi blood pressure is a side effect to prednisone taken in large doses for extented period of time.
and want to clarify that they only are 2 standart meds for mg. mestidone and prednisone. AND YOU HAVE TO LEARN TO ADJUST YOUR MEDS ACCORDINGLY, i know that it is tough
i myself at this time i am in remission of my worst relapse, and set at 30mgs. dayly of mestidone and 5 mgs. every other day of prednisone, and doing great,being that i am b4-generalized-bulbar extreme classification.
i learned to fully control my emotions,stress,excertion and more, my life style is totaly changed from the moment i got mg. by changing foods intake,
walking 45 " dayly slow or brish. excersisng like swimming yoga exct, as long that i dont stress or excert my self
i am 79 yrs, old and iam 81/2 yrs with mg.
if i can do better so can you it take lots of logic and commun sence, but you need to control your destiny, the neuros are there to lesting to you and approve what you are doing, because in many and all way you are you own doctors, practicioner, and executor.
just dont forget that you are not along
best of luck (fighter)