Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

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Face Twitching

Connie22
Connie22
Since my last post I now have another symptom today.
I woke this morning to have the left side of my face twitching (cheek and mouth).
As I have not been diagnosed of anything yet: just wondering if this another symptom I have that, points MG?
annkemp
annkemp
one day this...another day that.
Welcome to our party.
deleted_user
deleted_user
yes Im afraid Ann is right with MG could be a symptom and everyday is another adventure..Not meaning to scare you at all it is a part of the disease and sometimes something different. But again once you find out if you have or not and start treatment plan that will sure help so keep your chin up!! Jacki
annkemp
annkemp
Seriously
In the beginning I would wake upnd feel some kind of ne sensation.
It truly was insane.
I was so grateful I had a Husband who would just listen.
Describing the new weird sensation happened to me every morning for a least a year.
They still happen a lot but now I am more used to them.
One day energy, the next day weak. Even today I choked and choked. I thought ...is this it.....then I popped a mestinon, hit the couch and move on.
Feel free to always share what is going on with you...for some crazy reason it seems to help sort it all out .
jstlitlome
jstlitlome
Connie, I was just diagnosed last week and had never heard of MG until two weeks ago. Going through the same as you, wondering if every little weird sensation that I have is related to MG.(including face twitching) I'm seriously getting paranoid. I did agree to work out with my daughter tonight with fear and trepidation. And I'm still alive to tell you about it and feeling much more positive. (I just didn't force myself to keep up)
Hang in there.

Leslie
Connie22
Connie22
I go to another ENT doctor tomorrow and I sooo don't want to go!
I've already seen an ENT doc and he told me he cant help me but apparently this one has better equipment and can look further into my ear than the other one could (ear pain, deep inside is another symptom I've had since the start of everything). It's an hour away to the city I have to go to and that's just gonna be really exhausting for me.
My regular doc is back from holidays tomorrow as well. I should hear about my AcHR test and hopefully he finds out why my Anti Musk one couldn't get done at the lab.
I took myself off my Betahistine on Friday so that it wont goof up anything the ENT doctor does to test me. Surprisingly I don't have as much dizziness as I thought I would. Dizziness was my first symptom to start everything 9 months ago and now it seems that my face muscles being goofy / fatigued, fullness in my chest, harder to breath and gaggy throat are the ones that are dominating.

I thank all here so much that read my posts and make comments. If I hadn't found this place I know I'd be feeling a lot worse. :)