Hi Christo,
It has been my experience that cold weather actually makes me feel better. I have much more energy and my symptoms seem more mild. The only difficulty that I've had is that also have psoriasis that start to hurt when it's very cold. My Dr. Told me to put ice on my eye when my lids are droopy and it does temporarily help. I would feel better in a cold climate than in the heat.

Christo,
I'm sure you already know MG is different for everyone. Some folks seem to do very well in the cold, others do better when they are warmer. In some cases, it's the dramatic change in temperature.

This was my first MG winter, all I can say is what a nightmare... For me the cold was as bad as the summer. This will be my first summer on medication. I am anxious to see how things go.

Best of luck of this winter!

I've had one summer and one winter being diagnosed now and the summers are definitely harder on me. However, winters have their own issues. I noticed if I get chilled to the point of shivering I am very likely to fall down. The muscles in my legs seem particularly fatigued by shivering.

I would think that based on the water temperatures of when you are taking a shower should be a decent tell of how you will react. How does your body react to cold shower and how does it do with a hot one? I agree with cathi that shivering cold will present a problem due to muscle usage for shivering.. I can get in the shower with decent strength and leave it pretty weak if I decide to take a really hot shower and/or stay in there too long. My grip becomes terrible when I leave my hands under the hot water for too long. I would love to be able to use a hot tub/sauna or spa again..(sigh) When showering, I find it best to sort of go in and out from under the shower head as I do not enjoy taking cold or even lukewarm showers. I do not want to have any major problems in there either. I've had to open the door for cooler air to be ok while I am getting the water off the walls and door afterwards.

So, basically I am suggesting that extreme temperature would bother us both ways, but hey, extreme temperature bothers everyone so it is what it is. Just not as much, obviously. I certainly know that I prefer cold over hot, and I have noticed the difference. I wish it would never get over 80, and never below 60 and things would be great. Living in the valley, it gets well over 100 here in the summers, but winter I get no snow, spring is gorgeous(no allergies) and fall should be very tolerable for me.

Best wishes for peace,

TJ

I just went thew my first winter with MG. I live in Alaska and the we usually get a week or two where its 30-40 degrees below 0. It didn't seem to make my symptoms any worse than normal. I haven't experienced hot summers yet. It only gets about 70-80 degree here in the summer with little to no humidity. Gotta love an Alaskan summer!

Christo, Well as for me when i get cold forget about it i cant even get my self off the floor or up! Its scarry! Summer is approaching so i will be seing how it affects me ! Good luck! and as already stated it is different for everyone! any dramatic weather change is not good !

Hello!i was diagnosed two weeks ago. MG has affected my voice, before mestinon i didn't have any, the only thing that helped was cold drinks and cold weather. but whenever i am cold and i start shivering my face muscles act up and i can't form words. it hasn't happened before, this winter was extremely cold here.

Hi Christo. I live in Canada...so, come visit and try the cold!!! .....I was diagnosed last Summer, July 2016 and found the heat unbearable. It really aggravated my MG as my respiratory is my most vivid symptom. The Winter cold has been ok! I have my dog so I do the due diligence and play in the park with him often.... and I seem to function better in the cold. Or rather... the months with my MG has made me a bit more resourceful in how to manage it. I love skiing.... such is what Canadians do. Eh? But this year... I made sure I stayed out on the slopes for less time than I usually do. And I picked the somewhat less taxing slope. I always make sure that I am dressed appropriately. Especially around my neck and chest. Most of all.... stay away from the people with colds and flus! I think one of my new found lessons is to curb hot drinks. In Winter we like to drink a lot of hot beverages like tea..... but I found that this aggravates my MG around my throat and neck muscles. I'm not sure where you live.... the Yukon perhaps??? I was thinking that if I can't bear the Summer 2017... I might as well apply to work in the Arctic. Maybe fight against Arctic drilling and protect Polar Bears!!! Or better yet... fight against the Dude that wants to build a Resort on the Arctic! Or .... maybe not. MG Patients might like to book time on that Resort!

Since being diagnosed a little over a year ago I survived a winter with temperatures as low as 30 below and spent a week in Vegas when it was 114 degrees. I do believe that MG at these extreme temperatures does make things worse. In my case, not by much, but if you have a more severe case I could see it effecting more. It makes sense that if your muscles tire easily because of MG, and that extreme temperatures also make muscles tired, then the combination will make things even worse.