Yes you can go into remission at any time, for any length of time. Enjoy the normalcy and the energy, you deserve it. I've been symptom free since my thymectomy. Initially I worried that the symptom s would re appear, but I quickly realized worrying was a waste of time and energy. If and when my mg re-surfaces, i will deal with it then, no need to fret about it now.

Great to hear things are going well for you. I'm just at 4 years of MG remission.
I got MG in May, 2012, was on prednisone for a year and as I was tapering to the lowest effective dose, tapered to zero and MG never came back. My neuro said about 15% go into remission and it can be anytime during their disease course and can last for any amount of time (including 20 years for some folks and others the rest of their life and others only a few months).
I am now MG remissed since May of 2013, soon to be 4 years. I was achr positive with MG controlled by prednisone. Although I know it may come back, and I sort of watch for it, so far I am very much back to normal and very active again. I have almost forgotten what MG was like!

I've had MG for a little over 14 years. No drugs were involved in making it go away, and honestly that is what makes it weird for me. I hadn't seen a doctor in a little under a year, and was just more or less coping with it, until one day I wasn't. I'm starting to make plans, like potentially going back to work, though admittedly, I'm not sure with what yet. 14 years out of the workforce makes it kind of hard to start a career or what have you at 35, likely 36 before I really get started. My only fear is that when I get off of disability that it will return, and then I'll have nothing to fall back on should it return. In truth, I don't want to be on disability at all, and am really looking forward to coming off it so I can kind of chart my own destiny, but in the back of my head, it is a worry. It was hard enough to get on it back then, can only imagine how hard it would be now if I am alright, and then go back to being sick again.

Hello I was diagnosed with MG June 2015 after having MRI of chest that showed tumor in my thymus and high blood level of ACHR .The neurologist recommend surgery , my thymectomy was August 2015 .The muscle weakness diminished after the surgery and I was receiving IV IGG every 4 weeks from june 2015 thru november 2016 plus mestinon 3 times a day . Since september 2015 my muscle strength began to improve and now I am reconditioning my muscles with daily exercise .Unfortunately I am still experiencing muscle weakness late each day at 5-6 PM . I still take mestinon but infrequently.My neurologist said I was in remission in december 2016, for me this means that I am able to do physical activities again. The major stress I experience is emotional ,in communicating with my wife. She often forgets this MG is going to vary with day to day life. My fear occurs when she is angry at me, then my speech starts to slur. My hesitation to take mestinon daily is because of the side effects increased urination , diarrhea that I have had in past year 2016. Remember each of us is unique in our particular experience of MG and it means to keeping a positive daily approach.

Tesinato, your neurologist doesn't know much about MG. It is not common, but yes, from what I've read on my two MG Facebook support groups, this can happen, either from treatment or just spontaneously and can last days,weeks, months or years. In fact one of the things my neurologist said to me shortly after diagnosis as I was commiserating the future, was "maybe it will go into remission".

I believe I have recently entered a remission, and I will explain why I think so : My symptoms started insignificant but progressive in the Fall of 2015. Long story short, by the time I went to my neurologist in July 2017, I had been battling progressive disabling weakness and extreme double vision (literally two of everything, a couple years of difficulty swallowing, choking, breathing, etc). . I was seronegative, but diagnosed by the 85-95% improvement of symptoms taking Mestinon. I knew exactly when my Mestinon wore off because the symptoms came back with a vengeance.

For the last 3 years, I woke every morning feeling like my arms and legs were encased in cement. On a Saturday morning early this month, I woke up and my arms and legs felt strong; felt so "different" I went ahead and took my morning Mestinon only to find that after an hour, I was becoming very weak. For the next couple weeks I continued my Mestinon but continued to give the opposite affect that it used to be. I got weak after I took it and stronger when it wore off !! What the hell?? Because Mestinon will have this effect on those who don't have MG, or in remission, I wasn't sure if I should take more and risk a "mestinon" crisis or test it and take less. My story , which I intended to be short and turning into Loooong is.....I stopped the Mestinon and feel, without any medication, almost 85% pre-MG. Of course I am a little out of condition because I've gone 3 years barely able to walk, much less exercise, but I no longer have that creepy crawly "pac man" nibbling sensation in my arms and legs when meds are due. I can actually raise my hands above my head and not have them fall clunk on top of me !! AND I have been totally off Mestinon. I was actually MAKING myself weak for a couple of weeks by TAKING the Mestinon. I will always have MG and I don't know how long this will last....a couple days, weeks or whatever, but it sounds like you are in remission. Enjoy the wave as long as it lasts.

Hi! I am experiencing the same things as you. All the sudden I feel like I am back to normal. My doctor even told me she believes im in remission. I workout and can really push my lower body. I also have been running... which is SO weird because before I got diagnosed I didn't/couldn't even run well in general. For the most part I sometimes forget anything is wrong with me.. and that I'm just a normal college student like everyone else. I am so happy that things are doing better for us both.

I do get where youre coming from when you say youre nervous if it will last. I find myself in situations where things are going so well and then taking a step back wondering if my smile will stay working the way it is, or if I wont be able to breathe well on runs again.. It scares me bad. I wish I could say that I wont worry and just enjoy this time but its hard. I think that we need to just go with the flow and try not to everything the situation we are in. We deserve normal and to be happy and healthy for a bit of time - as long as that is!! I hope you keep improving.

Tesinato

sorry to hear the fears that you going thru, unfortunatly mg is a desease side of being progressive, has the tendency to take us for wilds roller coaster rides.

i have mg sice 2011 and in 2013 got my first relapse, fought thru it and was in remission until nov/2018 as iam a classification 4b2 generalized bulbar my respiratory aparatus give up on me,, was intubed, and thru ivg treatment and other was able to rebound, to tell you the thruth i beleived i bought the farm
but in the last 6 month iam in total remission

but to accomplish your goals it is important 4 major things

1) have a good neuro where the flow of comnunication exist
2) control the stress that we create in our mind as it is the worst enemy of mg
3) have total control over the activities that you put your body, i mean absolute no excertion
4) you need to change your life style, invluding food intakes, beverages ect.

i have learned that the way to control your mg, is by using lots of logic and commun sence.

i never was sick in my life, dont even know to take an aspirine, strong as a ox,
but like all of us sucombed to mg,

at 79 yrs, old , i can say i learned to mange my fears, doubts and others and be able to control my mg.
i walk 45 minutes dayly slow or brisk, for exercsise i swim, practice yoga, ride a steady bike, but all in moderation, i do not allow my body to feel streesed (excert)

best of luck (fighter)

MG definitely can go into remission spontaneously I've experienced it a few times since I was diagnosed back in 99. I do have my theories why this occurs.

Hi, I'm kind of late to the party but only now discovered this page looking things up.

I too have experienced remission over and over again. My MG is Ocular and has been that way with each occurrence. My first occurrence was back in 2006, when I was just 19, lasting for about 6 months before it went away on it's own. Then it came back again in 2012 lasting for roughly 3 to 4 months. I then had it a couple years ago in 2017 lasting for about 6 months. And more recently just a few weeks ago at time of writing, I believe it was Dec. 10th to be exact. And here we are.

The doctors are baffled by my case and I find that to be more stressful then the disability itself. They cant explain what's wrong with me, and despite having this 4 times now and taking multiple tests, they cant prove I have MG though they are thoroughly convinced that is what I have.

It always puts me out of work and that sucks because I get bored easily when left to just sit around and do nothing. It's even worse when I consider it I try to do activities I quickly become nauseated or dizzy and have to stop doing whatever after only a few minutes or so.

But so, that's my story. I'm 32 now.