Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
She says that she believes the Cellcept has started to work for me, and that I should continue to get better....(now in my third month of taking it)
Plenty more to say, but I am at a loss for words. Things apparently are done differently in CA. Not sure.
I take a Mestinon and Timespan all the time also, and finished an IVIG treatment over a month ago. Besides this, Cellcept is the only treatment for my generalized MG I have done
Best wishes to all for peace,
TJ
Plenty more to say, but I am at a loss for words. Things apparently are done differently in CA. Not sure.
I take a Mestinon and Timespan all the time also, and finished an IVIG treatment over a month ago. Besides this, Cellcept is the only treatment for my generalized MG I have done
Best wishes to all for peace,
TJ
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This isn't really bipolar related but there is never anyone on the parenting groups, this is the most active group I've been in.My 6yr old son has really bad seasonal allergies and they're in full force right now. He gets a terrible cough; he coughs all day and all night, making it hard for him to sleep, and his nose runs.I've tried every allergy medicine, OTC and RX, and none of them affect his...
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Is anyone here allergic to Sulfa that is currently taking Diamox? I have been diagnosed with IH now for almost 2 years. I am allergic to Sulfa drugs meaning that my throat will swell up so my Neurologist put me on Topamax. I was suffering from major loud whoosing noises and the topamax helped that but everyday I still hear those mainly between 6 - 12 pm. I am at my wits end and have not went...
She is very optimistic. I was encouraged by her words today moreso than I ever have been. Only thing I didn't like to hear is that there was no optimism for me being drug free...I suppose after a year we can re-evaluate that scenario. I saw my general doctor too, and they are working well together for me to keep me in good/safe health and making me feel comfortable with my current treatment plan. She told me she felt I can sustain my current state with my current regimen and progress from there, which was exactly what I wanted to hear. learned some stuff today, and that is always a good thing(re-confirmed some beliefs and understandings as well)....For now, I see her again in three months and continue with Cellcept and my Mestinon/Timespan Regimen. Emailing my doctors if I feel the need with questions/concerns.
I agree Annette...Continued better days to all of us! I so wish nothing but better days to all of us. Feeling like crap is no way to go.
Best wishes,
TJ
Thanks very much for your suppport. It is appreciated greatly...Continued good health to you.
Best wishes
TJ