Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
I have a device that opens jar lids and use it.
When a package says "tear here" I use a scissors. I have scissors stashed in several places for fast access.
Shopping carts in stores are used to carry my purse and to prop on when tired and I need a rest.
I ask for wheelchairs in airports.
I have containers where I keep tools so I don't have to expend extra energy fetching them each time I need them to use them.
I consider my BIPAP machine an assistive devise. It is mandatory at night but I also use it when my breathing gets too weak and I am waiting for meds to kick in.
Marie, layout is a tool and a skill. Thinking ahead like that is certainly a great idea and does help to save energy, I have without realizing it have been doing just that in my kitchen. Most of the commonly used items have been moved to an easier to reach place.
What's the expression...."Work smarter, not harder"
Joe
Here is the Link to the tips:
http://www.dailystrength.org/groups/myasthenia-gravis-links-and-news/discussions/messages/14145246
b.
Stoneware dishes with Corelle.
Tervis mugs.
Clunky shoes with Crocs.
Leather handbags with nylon, which are mostly empty now. I try to purchase pants with good pockets for those days a purse is just too much.
Felt pads on all furniture legs.
My dream kitchen would have no upper cupboards!
Larissa
I have a placard tha I use when i need to.
I have folding chairs by the folding table, so I can fold laundry and sit.
I also sit while I do my hair and makeup.
I had forgotten the lightness of crocks! They are my favorite shoe now.
--Kerry
A handicap placard has been a huge energy saver.
My walker is great for hard days so I can sit instead of stand in line.
I also use it to store my purse and save my arm/shoulders from it.
The autocarts at the store are really helpful too.
Lightweight everything. I don't do heavy computers, purses, bags, etc...
I have all auto seats, doors, backhatch, etc.. on my van. (Quest)
Recliner with automatic button for reclining/sitting up
Dishwasher and laundry TABS (so no more struggling with
heavy bottles)
Pump dispenser for shampoo and shampoo
Shower chair
Handheld shower sprayer
Pill case for extra mestinon in purse (no running out of those!)
HTH,
Carly
The Rollator seat can be handy, for taking a break. But a Rollator is more work than a cane (at least for me), it can use up more precious energy, no question. But I also use the Rollator like a transport cart, when bringing supplies to aging relatives.
I've graduated from Corelle dishes, to paper plates (wimp).
Big-Box stores? I use their electric scooters. If they don't have any electric scooters? They don't get my business.
Groceries. My brother pointed out to me: stop using the grocery-chains, for mid-week replenishment. Many convenience stores now carry a moderate line of groceries. Use your handicap-placard to park near the door. A quick trip inside, a quick trip back to the vehicle.
and narrower for easier use. I just want my generous seat size. :)
If the big stores are out of carts or they are not charged, I leave.
If I have family with me, they go in and check before I waste a walk in to the store.
HTH
Instead of pushing the gas peddle all the time I use the cruise control whenever I'm going faster than 35 mph. Even in town. Every second not spent pushing that peddle gives me the strength for something else.
When it comes to breaking, once I come to a stop (like at a traffic light) I put the car in park. It may annoy others around you but as long as you don't close your eyes and take a nap, it's a much safer bet. The other option is letting your foot slip off the break and watching yourself rear end the person in front of you.
Bluetooth has been awesome also. I couldn't live without it. It's best if it is built into the car itself but you can purchase it by itself. If I am talking on the phone and not in the car I use speaker phone. At least that way I can put it on the table or desk and I don't have to hold the phone up to my ear.
Okay, those were my add ons. I am interested in the "goose neck mounts that can hold things like hairdryers" that mgot mentioned. That is one of the things that I struggle with the most.
Hope everyone here is full of strength and positive attitudes.
Hugs to all.
Angie