Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
I read on an older post about some ways that others have learned to cope with the tasks that take the most out of us. I am wondering if there are other devices or short cuts used to make it through the day?
I do have a handicap placard and a cane but currently my husband uses the can more than I do but it's there in case I need it. I only use the placard if I need it and I am thankful for having it. We also have a "grabber" to pick things up when they fall which happens all too often. We also recently invested in a bidet which some may find yucky but it is a very helpful tool when movement and strength are impossible.
Anyway, what other methods have you used to get by? I'm hoping that reading your methods can be used by others to improve their quality of life.
Thanks for your feedback.
Angie
I do have a handicap placard and a cane but currently my husband uses the can more than I do but it's there in case I need it. I only use the placard if I need it and I am thankful for having it. We also have a "grabber" to pick things up when they fall which happens all too often. We also recently invested in a bidet which some may find yucky but it is a very helpful tool when movement and strength are impossible.
Anyway, what other methods have you used to get by? I'm hoping that reading your methods can be used by others to improve their quality of life.
Thanks for your feedback.
Angie
Ido find I am having more problems carrying my kids. I can lift them with difficulty to put them in their carseats, but I just can't carry my 2 yr old across a parking lot like I could before. This may sound awful and like bad parenting, but I use the help of my 3.5 yr old for a lot of things. I lift her out of her carseat, then walk with her over to my son's side ofthe car. I get him out of his carseat, put him on the ground next to her, and the three of us walk together. Often I'm carrying a bunch of things like a sherpa, and can't safely hold a hand on that side. I hold my son's hand on the opposite side and my daughter holds his hand. I wouldn't do this if she weren't reliable to stay with me and alert at all times.
Right now for assistive devices, I mainly use my cell phone for medication timers (4x/day) and my eye patch when I need it. When I'm slurry I let the machine pick up when someone calls, or just text. One of the things that is helping me a lot are headphones. I am having a lot of trouble with a high stress time (mostly marriage stuff), I just put on headphones and block out the sound around me. Pandora is free if you have internet access. I like "Classical Romance Radio" station.
toddler
Be sure all bottles are clearly marked for you and not tempting for little ones in the household or visiting children.
(Other ideas in the Links Group)