Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Hi everyone,
Does anybody have trouble with involuntary muscle jerking? I am concerned, because I first noticed it only when relaxing, or drifting off to sleep. The last few days though, it's been happening throughout the day. My arms, legs (one or both) or torso muscles have been jerking, especially right after I sit down or get back up.
I have many MG symptoms, but am still undiagnosed, since I'm
negative so far on all the blood, muscle and nerve tests. I guess I shouldn't have googled it, because it seems it can harmless, but it can also indicate serious things like MS and Parkinson's. I'm hoping it's not anything more than muscle fatigue or something.
Tamara
Does anybody have trouble with involuntary muscle jerking? I am concerned, because I first noticed it only when relaxing, or drifting off to sleep. The last few days though, it's been happening throughout the day. My arms, legs (one or both) or torso muscles have been jerking, especially right after I sit down or get back up.
I have many MG symptoms, but am still undiagnosed, since I'm
negative so far on all the blood, muscle and nerve tests. I guess I shouldn't have googled it, because it seems it can harmless, but it can also indicate serious things like MS and Parkinson's. I'm hoping it's not anything more than muscle fatigue or something.
Tamara
I'd encourage to you to start a journal and outline these symptoms to your doc on the next visit which I would make soon.
At the meeting a few weeks ago someone there mentioned having that during waking hours. Let me see if I can find who. I know at times at night I have the jerking sensation.
Hugs,
Annette
If you are searching, I think this would be called a "dyskinesia' or abnormal involuntary movement AIM. Side effects of medicines as well as neurological problems can be the cause.
Good Luck
Jacki,I really have to stop googling, because I also saw that he jerking can be caused by mad cow disease :-)
Annette, thanks....let me know what you find out.
Ray, I was originally diagnosed with MG because Mestinon did help me, and I had a muscle biopsy which didn't show any deterioration. However, I got toxic from the Mestinon, so I had to stop taking it. Now I'm just on prednisone. I'm sorry you have the muscle jerking, but glad to know that it can be symptomatic of MG.
Dealmaker and Rlhansen, I have an appointment with a new neuro next week, from a practice group that treats a lot of MG patients. I will also see the neuro who specializes in breathing disorders, and after that, the neuro opthomologist. So I'm hoping that between the three of them I'll get some answers.
Thanks again all! Have a good weekend!
Tamara
I am new to this group. I have not yet been diagnosed but suspect MG, awaiting labs to return. I have muscle jerks all over during the day. This came a few months after the ocular symptoms for me. Now I am having jerks and trouble with swallowing.
I am double antibody negative but confirmed MG through single fiber EMG.
I think what you are describing may be myoclonus. I went through a period of that before I was diagnosed. Although mostly I had twitching under my skin which, when I showed a video of it to my neurologist, turned out to be myokymia. It went away after I started taking Mestinon.
Myoclonus can be caused by many things - and some of them aren't particularly serious. But be sure to tell your neurologist!
About the trouble swallowing. Whatever the cause, when it is acting up, be sure to take small bites and try not to talk when you are eating. Your physician may send you for some swallowing tests, and if they are positive for dysphagia, a speech pathologist will probably show you some techniques that help.