Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
In addition to having trouble standing and sitting, Jeannie is having trouble typing, focusing, and using her phone, but was able to get through to us.
She is getting platelets today and frequent PLEX. She is being carefully monitored in the cardiac unit (not for heart trouble, but it is quiet and where they have the most comfortable beds in the hospital, she says), and the staff is attentive, including her wonderful PLEX team. Her neuromuscular doctor from Charlottesville is monitoring her care and in addition to getting in touch with the powers that be where she is, has sent a personal communication. (Insert sigh of relief. )
She says the Ensure is yummy but otherwise seems in her right mind and recognizes that may be a little strange, so no delusional symptoms. b.
She is getting platelets today and frequent PLEX. She is being carefully monitored in the cardiac unit (not for heart trouble, but it is quiet and where they have the most comfortable beds in the hospital, she says), and the staff is attentive, including her wonderful PLEX team. Her neuromuscular doctor from Charlottesville is monitoring her care and in addition to getting in touch with the powers that be where she is, has sent a personal communication. (Insert sigh of relief. )
She says the Ensure is yummy but otherwise seems in her right mind and recognizes that may be a little strange, so no delusional symptoms. b.
Ange
Thanks for updating us as I know I have been wondering how Jeannie was doing. I am secretly glad she is staying a few xtra days, we need her better!
Luv to you and to Jeannie
Annette
Nicole