Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Hello everybody, i haven't logged on here for almost 8 months i believe. i was depressed i can say so i kind of just shut out. But i am back & feeling good. I just wanted to check in with everyone & ask how everyone is doing? As for me i can say i am doing okay. back in Feb. my Doctor & I went down on my IVIG i use to do 3 days every 3 weeks & now i am at 2 days every 3 weeks. For the first 2 months i had major anxiety because i was so worried lowering one of my days would make me weak because it had happened in the past but i we are almost in July and i feel okay at 2 days. A do feel a lil weak in my throat 3 days before my treatment but nothing serious as long as i take my Mestinon i do just fine. & we also went from 10Mg of Prednisone to 7.5 and i seem to b doing fine so far. Don;t get me wrong i still get anxiety at times but i learned to manage them better. so that's just a little update. i would love to hear how everyone is doing.
Love, Camy
Love, Camy
nanniedean
Annette
Will
I'm relatively new to MG and the community and am doing o.k. today. Thanks for asking.
Larissa ;)
wllcope- Welcome to the Group. i hope your doing well. & Thank You
limpnoodle- Welcome to the Group. i hope to hear more from you
larissam-yeah anxiety always finds its way with me. but im getting better at it. ;) Welcome to the group. and im glad your doing okay. i hope it stays that way.
Have you ever been in therapy for anxiety? I was a long time ago, and it helped me, but the problem is that when I don't have any problems for a long time and a major one comes along I find that I have to try to remember how I deal with it all. Like all the little tricks I learned.
But I have gone to therapy before and it did help but I stopped going just when I thought i felt better.