Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
The last tetenus shot I had triggered the worst attack I ever had. Actually it was the one that led to my DX. Since that time I have avoided any kind of vaccine. My neuro keeps wanting me to get a flu shot, and I keep telling him he is crazy. Am I the crazy one? Have any of you had relapses after a vaccination?
My opinion is if your MS is caused by a biotoxin like mold or Lyme Disease you would probably not react to the flu vaccination. With metals it is body burden not allergies and this is also my opinion. The flu vaccinations have thimerasol in them so as far as I'm concerned they are dangerous also my opinion. You can ask for them thimerasol free through.
But Sharon I am with you on a lot of the really nasty environmental stuff that is happening. And although everything that happens is not a conspiracy we do need to be guardians of what is happening on our planet.
I do agree that our Soldiers are put under unnecessary risk and that not all is stated about the problems that they are having. But I think some people get on a witch hunt and don't look at things as carefully as they should. Someone I heard said recently that we all aproach the world with an idea of how it exists for us and we constantly try to verify our beliefs but the information we gather. I am as guilty of that as anyone. The truth is we live in an imperfect world and no one can control all of the factors involved. I can't imagine what we would do if we suddenly got rid of all of the metals in the world. The human body has been living with metals for a very long time. Sometimes things just go wrong. I fed my son some Jicama once and he nearly died. Should we exterminate all of the Jicama?
If you are saying that we should be made aware of the things that are affecting us as individuals that is great. We need to be more analytical in finding those things out. But they are not the same for everyone. And it doesn't mean that there is always a conspiracy.
Dr Wessely-Everyone should be made aware09/06/07 11:20 AM
For those who haven't heard of Simon Wessely, here is an extract from a document. Thought you may be interested. You may need to print it to read in your own time.
He is the psychiatrist who is making us all out to be mentally ill, for his own gain and to save the government embarrassment from thousands of medical insurance claims. After reading this you'll realize that if anyone needs a psychiatric help, he does!!
I am up in arms at the moment as I have received a date for my disability tribunal, 26/9/07. The letter says to provide evidence if necessary to take with me. So here is a start:
What is the Wessely School?
UK policy concerning ME is based on the intransigent beliefs of a group of psychiatrists led by Simon Wessely, for years an adviser to various Government Departments including the Ministry of Defence and who is now Professor of Epidemiological and Liaison Psychiatry at Guys, Kings and St Thomas Medical School (GKT) based at Kings College Hospital (KCH) and at The Institute of Psychiatry (IOP); he is also Director of the Chronic Fatigue Syndrome Research Unit and of the Gulf War Illnesses Research Unit, both at Kings. Other leading members include psychiatrists Michael Sharpe (formerly of Oxford and now at Edinburgh, where Alan Carson now collaborates with him); Peter White (of St Bartholomews Hospital, London); Anthony David, Anthony Cleare, Stephen Reid and Matthew Hotopf of The IOP and KCH and Richard Mayou, Keith Hawton and Christopher Bass of Oxford. Trudie Chalder, a former Registered Mental Nurse, works with Wessely and her name often appears on their publications and in funding applications. Other supporters include Elena Garralda, Professor of Child and Adolescent Psychiatry at St Marys, London; Tony Pelosi of Glasgow; Stephen Lawrie of Edinburgh; Alison Weardon and Leonie Ridsdale, Senior Lecturer in General Practice at Guys, Kings and St Thomas, London.
The stated aim of Simon Wessely is to eradicate ME from the medical lexicon and to re-classify CFS as a mental disorder which does not need biomedical research or explanation and which is to be managed by a version of cognitive behavioural therapy which he claims to have developed. His own commercial involvement in such a management regime has been established (see below).
The certainty of these psychiatrists that they are right whilst other researchers of international repute who disagree with them are wrong, their power and their influence are destroying countless lives, yet they continue to fly unscathed even in the face of substantial evidence that calls their views into question.
Wessely School psychiatrists have built their careers and reputations on denying the physical nature of ME/CFS, with the result that untold numbers of chronically and seriously ill patients are bullied, derided, threatened and driven to suicide by being told that they are not physically ill but are suffering from aberrant illness beliefs.
The constant theme running through the work of this group of psychiatrists is that CFS is a somatoform disorder and that factors such as female gender, too much focus on normal bodily sensations, specific personality traits, avoidance behaviour, learned helplessness, faulty thought processes, lack of motivation, inadequate coping strategies, interpersonal conditioning and contagious sociological hysteria play an important role in the perpetuation of the disorder.
Wessely School psychiatrists have been described in the eBMJ (N Portman, 3rd December 2003) as a small clique of undemocratic, unaccountable, self-serving psychiatrists who have managed to monopolise most of the research funding in this field and, thanks to their prejudices, have been its downfall ever since.
Without doubt, the influence of Simon Wessely has resulted in a cascade of horrors which most people in the UK do not know about and when they do, they find scarcely believable.
It has taken 25 years for the notorious Professor Sir Roy Meadow to be exposed and discredited as world expert on Munchausens Syndrome by Proxy, whose views Lord Howe described as one of the most pernicious and ill-founded theories to have gained currency in childcare and social services in the past 10 to 15 years. It is a theory without science. It rests instead on the assertions of its inventor. The downfall of Meadow, who is finally to appear before the Professional Conduct Committee of the General Medical Council, serves to prove that a so-called medical expert whose views apparently portray incontrovertible medical judgment and certainty may, in fact, be wrong, but the damage done cannot be undone. So it is with ME. It must not be allowed to take 25 years before the views of the Wessely School on ME are subjected to similarly rigorous public examination and exposure.
Many doctors and their non-medical managers still have misguided ideas about medical negligence and believe that doing ones best is all that matters or is required. This is not so in law and the legal profession is about to become less deferential to the medical profession. (http://bmj.bmjjournals.com/cgi/eletters.327/7424/1118#41799)
The Opinion of an eminent Queens Counsel has been obtained
A leading QC and member of the House of Lords was asked for an Opinion on the Wessely School approach to ME: that Opinion is unequivocal; it states: On the document you have sent me there is an overwhelming case for the setting up of an immediate independent investigation as to whether the nature, cause and treatment of ME as considered by the Wessely School is acceptable or consistent with good and safe medical practice. There is substantial doubt as to whether such could be the case. A formal request should be made to set up an enquiry. It is essential that a reputable firm of solicitors should be instructed.
Are psychiatrists cruel?
Based in New York, Dr John Diamond is a founding member of The Royal College of Psychiatrists. In an extract from his recent book (Facets of a Diamond 2003) in the October 2003 issue of the journal What Doctors Dont Tell You, Diamond says I am no longer a psychiatrist. I renounce it because I believe cruelty is at the core of the profession (and) I believe that there is something inherent in the profession that tends to bring out any cruelty lurking within. I have long wondered why this profession --- which ought to be so compassionate has, it seems to me, turned its back on humanity.
A recent article in The Sunday Telegraph (Trust me, Im a psychopath by Alasdair Palmer, 30th November 2003) quotes Dr Robert Hare, a Canadian professor of psychology, as saying The psychiatric profession and its associates are very reluctant to admit they are wrong or that they have made a mistake.
Yet psychiatrists have powerful positions of control and ever more credibility in so many areas: Simon Wessely and Anthony David were funded by the US Pentagon (and came to the conclusion that Gulf War Syndrome does not exist) and Wessely is involved with advising NATO. Add to this the errors of mis-diagnosis made by psychiatrists in the past (Parkinsons Disease, multiple sclerosis, epilepsy, diabetes, thyrotoxicosis and many other disorders with a physical causation have all been asserted by psychiatrists to be mental disorders until medical science revealed their true aetiology) and one has a right to despair at the current situation facing ME patients.
Two illustrations of the implementation of Wessely School policy
Out of the many known cases of patients being persecuted as a result of the implementation of Wesselys policy on ME, just two are mentioned here: details of many others have been put before the Chief Medical Officer, who has made it known that he receives more letters about ME than on any other medical issue. There are numerous records relating to this matter in Hansard (both Lords and Commons) and on 23rd November 1999, the House of Commons Select Committee on Health produced its Report looking at adverse clinical incidents, unexpectedly poor outcomes to treatment, failures in medical care and poorly-performing doctors: that Committee took representations from at least eight people about ME.
1. The case of Ean Proctor
In 1988, a formerly healthy 12 year old boy named Ean Proctor from the Isle of Man had been suffering from ME since the autumn of 1986; his symptoms included total exhaustion, feeling extremely ill, abdominal pain, persistent nausea, drenching sweats, headaches, recurrent sore throat, heightened sensitivity to noise and light and loss of balance; he was also dragging his right leg. In 1987 his condition had rapidly deteriorated; he had gradually (not suddenly as may occur in hysterical disorders) lost his speech and was almost completely paralysed (which lasted for two years). He had been seen by Dr Morgan-Hughes, a senior consultant neurologist at the National Hospital in London, who had reaffirmed the diagnosis of ME and advised the parents that ME patients usually respond poorly to exercise until their muscle strength begins to improve; he also advised that drugs could make the situation worse.
Although he did not obtain his MRCPsych until 1986, during one visit by the Proctors to the National Hospital in 1988, Wessely (then a Senior Registrar in Psychiatry) entered the room and asked Eans parents if he could become involved in his case; desperate for any help, they readily agreed. Wessely soon informed them that children do not get ME, and unknown to them, on 3 June 1988 he wrote to the Principal Social Worker at Douglas, Isle of Man (Mrs Jean Manson) that Ean presented with a history of an ability (sic) to use any muscle group which amounted to a paraplegia, together with elective mutatism (sic). I did not perform a physical examination but was told that there was no evidence of any physical pathologyI was in no doubt that the primary problem was psychiatric (and) that his apparent illness was out of all proportion to the original cause. I feel that Eans parents are very over involved in his care. I have considerable experience in the subject of myalgic encephalomyelitis and am absolutely certain that it did not apply to Ean. I feel that Ean needs a long period of rehabilitation (which) will involve separation from his parents, providing an escape from his ill world. For this reason, I support the application made by your department for wardship.
On 10 June 1988 Wessely provided another report on Ean Proctor for Messrs Simcocks & Co, Solicitors for the Child Care Department on the Isle of Man. Although Wessely had never once interviewed or examined the child, he wrote I did not order any investigations.Ean cannot be suffering from any primary organic illness, be it myalgic encephalomyelitis or any other. Ean has a primary psychological illness causing him to become mute and immobile. Ean requires skilled rehabilitation to regain lost function. I therefore support the efforts being made to ensure Ean receives appropriate treatment. Under his signature, Wessely wrote Approved under Section 12, Mental Health Act 1983.
In that same month (June 1988), without ever having spoken to his parents, social workers supported by psychiatrists and armed with a Court Order specially signed by a magistrate on a Sunday, removed the child under police presence from his distraught and disbelieving parents and placed him into care because psychiatrists believed his illness was psychological and was being maintained by an over-protective mother. Everything possible was done to censor communication between the child and his parents, who did not even know if their son knew why they were not allowed to visit him.
In this care, the sick child was forcibly thrown into a hospital swimming pool with no floating aids because psychiatrists wanted to prove that he could use his limbs and that he would be forced to do so to save himself from drowning. He could not save himself and sank to the bottom of the pool. The terrified child was also dragged out of the hospital ward and taken on a ghost train because psychiatrists were determined to prove that he could speak and they believed he would cry out in fear and panic and this would prove them right. Another part of this care included keeping the boy alone in a side-ward and leaving him intentionally unattended for over seven hours at a time with no means of communication because the call bell had been deliberately disconnected. The side-ward was next to the lavatories and the staff believed he would take himself to the lavatory when he was desperate enough. He was unable to do so and wet himself but was left for many hours at a time sitting in urine-soaked clothes in a wet chair. Another part of the care involved the child being raced in his wheelchair up and down corridors by a male nurse who would stop abruptly without warning, supposedly to make the boy hold on to the chair sides to prevent himself from being tipped out; he was unable to do so and was projected out of the wheelchair onto the floor, which on one occasion resulted in injury to his back. This was regarded as a huge joke by the staff.
In a further medical report dated 5th August 1988 for Messrs Simcocks, Wessely expressed a diametric opinion from that of Dr Morgan-Hughes, writing: A label does not matter so long as the correct treatment is instituted. It may assist the Court to point out that I am the co-author of several scientific papers concerning the topic of ME.I have considerable experience of both (it) and child and adult psychiatry (and) submit that mutism cannot occur (in ME). I disagree that active rehabilitation should wait until recovery has taken place, and submit that recovery will not occur until such rehabilitation has commenced..it may help the Court to emphasise thatactive management, which takes both a physical and psychological approach, is the most successful treatment available. It is now in everyones interests that rehabilitation proceeds as quickly as possible. I am sure that everyone, including Ean, is now anxious for a way out of this dilemma with dignity.
Ean Proctor was kept in care and away from his parents for over five months.
Although this took place in 1988, such brutality is still happening in the UK: the continued barbaric treatment of sick children by certain psychiatrists who profess to specialise in ME was the subject of a Panorama programme transmitted on 8th November 1999 and was profoundly disturbing (a videotape recording is available). Nothing seems to have been learnt from the appalling case of Ean Proctor and there is no question that children with ME continue to be forcibly removed from their parents and home; this issue was raised by Dr Nigel Speight, a consultant paediatrician at the University Hospital of North Durham with 20 years experience of children with ME, who in April 1999 reported to the Chief Medical Officers Working Group on CFS/ME that the frequency of psychiatrists diagnosing the parents of children with ME as having Munchausens Syndrome by Proxy now amounted to an epidemic. Jane Colby, Executive Director of The Young ME Sufferers Trust (TYMES Trust) says To have your sick child taken from you, to be suspected of damaging them yourself, just when they most need your care, is an appalling experience.
2. The case of Child X: Some ten years after her own nightmare experience, Mrs Proctor answered a knock at her door on the Isle of Man and was surprised to find herself confronted by a police officer who had been directed to question her by the Metropolitan Police. Although at the time she did not know it, another child with ME in southern England was being threatened with forcible removal from his home if his parents did not agree to his being admitted to a psychiatric hospital: in an effort to protect the child from inappropriate treatment and medical harm, his father had surreptitiously taken him abroad. When police officers broke into the house, it seems they found Mrs Proctors name and address and she was therefore suspected of assisting the boys parents in his disappearance and of harbouring him, which was untrue. Believing his son to be safe, the father returned to the UK where he was arrested and sentenced to two years imprisonment, a sentence he was happy to endure, thinking that his son was safe. However, the childs mother was then targeted and threatened with imprisonment if the boy was not handed over to a particular psychiatrist at a Teaching Hospital. The physically sick child was forced to spend seven months under the care of this psychiatrist and was subjected to active rehabilitation, during which time his condition deteriorated considerably. He is now severely ill and terrified of health professionals.
The lengths to which these psychiatrists who have focused their careers on eradicating ME will go in order to obtain parental obedience, and the control they wield, is extremely disquieting.
Professor Wessely, though, seems to be curiously affected by elective amnesia over the compulsory removal of children with ME from their parents: his involvement with the wardship of Ean Proctor is incontrovertibly established, yet in a Channel 4 News programme on 26th August 1998 in which the case of Child X was being discussed, when asked by the presenter Sheena McDonald if there can ever be a case for the coercive approach in situations involving forcible removal of a child with ME from the parents, Wessely stated (verbatim quote) You know very well I know nothing about these cases and when Sheena McDonald asked So you would agree that unless there is criminal abuse, there is never a case for a coercive approach to take children away from parents?, Wessely replied (verbatim quote) I think its so rare. I mean, its never happened to me. Despite this denial on national television, there is unequivocal evidence that Wessely had been personally involved in Ean Proctors wardship and that he had advised the local authorities to take the action they did. (Copies of Wesselys letters and reports and a videotape recording of the Channel 4 News item are available).
The formal international classification of ME by the World Health Organisation
Although formally classified by the World Health Organisation in the International Classification of Diseases (ICD) as a neurological disorder since 1969 (currently to be found at ICD-10: G93.3), Wessely School psychiatrists have succeeded in a gradual but consistent distortion of the clinical entity ME, by denying its very existence and by subsuming it within the heterogeneous label of CFS. The term CFS was first coined in the US in 1988 and at the time, it was indicated that it was intended to replace the older term ME or to be considered equivalent to it, but Wessely School psychiatrists have increasingly equated CFS with other chronic fatigue states (especially neurasthenia) which are formally classified in the ICD as Mental and Behavioural Disorders (ICD-10 F48.0).
It is important to be aware, however, that ME remains classified as a neurological disorder in the ICD (with CFS listed as an alternative term for ME) and that the WHO has confirmed it has no plans to re-classify the condition as a psychiatric disorder.
Current Government policy concerning ME/CFS
Whereas the American Medical Association has issued a Statement addressing the fact that basic laboratory tests are insufficient for ME/CFS patients because it is known that routine screening is normal in 90% of such patients and that more complex investigations (such as immunological assays, nuclear medicine screening and gene expression profiling) are essential to demonstrate the underlying biological and physiological basis of ME/CFS, in the UK current and future policy dictates the non-investigation of ME/CFS patients other than by routine screening; it dictates that no special provision or facilities other than psychiatric clinics need be provided for the care of ME/CFS patients; it dictates that no special training for doctors about the disorder is necessary; it dictates the denial of appropriate medical care; it dictates that there is no need for respite care (and commissioning officers are advised accordingly); it dictates that State benefits for those with ME be withdrawn unless patients agree to psychiatric intervention, whereupon (as for all psychiatric disorders) a lower rate of benefit is payable; it approves the use of Court Orders for the compulsory removal from their home of both children and adults with ME under the auspices of the Mental Health Act if patients decline psychiatric intervention and it dictates that no biomedical research is necessary into the disorder and that such research should not be publicly funded by Government bodies.
Dizzi X
My ON and seizures started 6 mos after a root canal that took 4 hours instead of 1-2. Talk about chem exposure.
BINGO! and now I know why I have been in a relapse for over a year, longest one ever. I had 2, 4-hour in hospital surgeries last april and May. Had 13 crowns, 3 root canals!!! Lordy!! Why didn't I think of that before now as to why I have not been well for sooo long!!
Thanks you guys! I wish I had my teeth all yanked out. I'm having more trouble now and have to make an appt tomorrow!
Sorry about your tattoo nickel problem. I am going to have a True Patch Test too. My mother was allergic to gold. And I have 4 new gold crowns!! This is incredibly disturbing. Why didn't I think of all this?
Joni
Joni
I cherish every day I have with them.
ME is myalic encephalomyelitis or CFS as it is called sometimes.
JHad
I don't know if you were serious in your last post but genetics plays a role in the development of autoimmunity from metals and biotoxins. I'm learning that there is a marker some people have called HLA-DR (defective toxin clearer in layman's terms). There are many extensions to this marker and one has been identified and it has been established if you have it your body cannot process biotoxins from mold. So even if your infection from mold is treated you will still be left with biotoxins. This can also be treated with drugs that bind the toxins and get them out of your body. Still some people will not recover from this treatment either but some do. I'm just learning about this so please don't take my word but if your interested do some research on it. It's quite interesting stuff. I think I may have found one for nickel. For me this means that my body can't metabolize nickel. I will find out more after I visit with an MD in a couple of weeks. The best way that I can describe and again this is me talking is it's like hemochromotosis (body hoards iron). Remember genetics loads the gun and environment pulls the trigger. Also JHad I have been diagnosed by a University Professor of Endocrinology who said I have an infiltration disease caused by the nickel resulting in Secondary Adrenal Insufficiency. In addition I have other problems as well.
I had a stainless steel biopsy clip put in my right breast and all of my problems were on the right side. It took me a long time to figure out what was going on and I even had a reaction after a pelvic exam with a stainless steel/nickel speculum. I broke out in a severe rash that had to be treated with steroids. This rash was mostly on the right side and I bled for two weeks. I'm a women who has never had an abnormal period in her life and I didn't have one after until the adrenal insufficiency stuff surfaced. Anyway it took me nine more months and a visit to my radiologist to figure out it was the clip in my breast. I believe we are deliberately kept in the dark and it's because the ADA has been covering up these adverse reactions and spending millions to keep it quiet. You also have big pharma who puts mercury (thimerosol) in vaccinations which they think causes autism. The ADA has been promoting amalgam fillings for over a hundred years. I have some excellent websites if you are interested.
I get flares when I am sick, so if you adding a shot into your body its not used to it can fight that to. Does that make sense.
Good Luck
Morgaine