I went thru this type of conversation with my sister this week. I actually had said nothing about my recent experiences with my health. SHE was the one who started asking me questions! (Probably, because my speech was slurred and I was mixing and matching words in my sentences) SHE asked when my (1st) neuro appt. was and I told her, when my quote unquote, letter from the dr.s office said 'introduction appt.' would be....that I wasnt holding out a huge amount of hope for answers that day, as I understand dx-ing can be a lengthy process. and then Bam!....again with the ear full of "Why do you keep saying MS!!".......(funny thing is I Never said MS! I only said dx-ing.) all the same, again- with her, I repeated -3 different primary care physicians suspect MS. and have made this referral to a neuro.--and smart thinking to me seems if i am going to be referred for such a thing, then maybe I should do some research on the subject...and that in everything I have read and studied, I really really do have a huge laundry list of symptoms, that may explain what I am experiencing, which is a bit of a relief because I am fed up with hearing it's all in my head or stress.

It was weird~felt like I got lambasted and I didnt even bring the subject up!! It's hard being in this limbo of knowing 'something aint right'....this sister, knowing the same and Yet! at the same time she communicates like she is pissed at ME about it!! I know-blah blah blah-her fear, denial etc.---I dont mean to be cruel concerning her 'feelings'---Im just over it--Im so ready to have an explanation-unlike her I have read a shit load of stuff concerning All the different things it could be--I'm just Not That Freaked Out anymore. NO-I dont want to have MS-but if I do and having to become my Own Best Medical Advocate and educate myself, it seems that I may....then ok-the only thing to do is what ever comes next.

I have learned not to talk to her. Funny, that I dont share my health issues--And! I Still Got an Ear Full!!! Cant win fer loosin'!!!

Hi Sandbug. I sympathsize with you. My husband is always complaining that I complain about my M.S. too much. He says that if Multiple Sclerosis is that bad that I should just go ahead and kill myself. When he says that it hurts my feelings REAL bad. Because I am only 43 and not ready to die yet. So, in order to not have my feelings hurt I am trying not to talk about M.S. too much. At least I have my 4 cats. I can say anything to them and they will always love me...

Storm, my husband is always in pain. He can't overcome it with drugs. They have him on quite a lot. We always allow him to talk about his MS as it is ever present on his mind due to the pain. Talk about your life, don't censor yourself. If people love you, they'll understand and allow you the outlet. Your son might have been really saying that he wishes you weren't sick and wants to fantasize that you're not. So when you talk about it, it reminds him that it's not going away.

Jesus, sharon, what support! Was "til ms do us part" in your vows?? Hey, I wish him health, but the fact is that as one grows older the odds staying healthy drop significantly. I assume he's around the same age...I'm going to be frank here: If it ever comes down to where your hubby has the "little man" trouble ,hehe, if u know what I mean (and that may happen as men even of great health age) simply and coldly say: "Well why don't you just cut it off already, it's of no use to either of us anyways"....lol. What a great dish of cold revenge! 1: I'm sure he would talk about it, complaints, sorries, etc. And 2: There is definitely no better way to harm the ego and stature of a man. Again, I wish him great health, but "in sickness and in health" are in wedding vows for a reason.....Good luck, men are rotten. I know, I am one, I live in "guy world". Psst...you didn't hear all this from me, I just broke the code.......=8^D

And PS-SharonMom, welcome to the forum!! Lot's of cool people and knowledge floating around!!

Hehe "Sandbag", I always say..."Can't win for trying!", don't know, but I say it! HA!...Great minds think alike!

Take care,
Stay sane!

Sorry, I meant to say "Sandbug"...I've been up since 3:30am. YAY!...Hehe!

Sandbag! BAHAHAHA!! OMG!! Girl, maybe I should use it as my new nickname! There are 'those' day's that I Do Feel like Sandbag!
Truly, Thank you for the laff!!

So sorry to hear about unsupportive family members. SharonMom, I wanted to write something supportive to you about your husband, but his comments are apalling and hurtful. I am sorry. I am sure he doesn't mean it, but it is still horrible.

I think I talk about my MS too much with my closest family when there is something new and scary going on and I can't get it out of my head. I try hard not to dwell about it with other friends and family. Nobody really want to hear about it all the time.

I had a beautiful aunt with MS. We were very close. She spent about a decade in a wheelchair before dying of cancer in her early sixties. Because of her my family knows MS and they took my diagnosis very hard. luckily they are very supportive.

Figureitout, I love your psychosymatic comment. I seriously believe I will "beat" my disease. Maybe this is one of the reasons I am doing well?

The best to all. At least we can discuss our MS with eachother :-)