Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
This community is a place where members can discuss current events and weigh in on what's going on in the world.
This way they keep the drug companies profits high so the doctors get the kick-backs from them. If they treated the cause, we wouldn't need their drugs!!!
I have been thru so many crappy doctors over the 19 years of back problems it would make people sick! I'm now on #3 for ms, but I must say, I haven't had any dx like you all have!
I had a neurologist tell me to put my cane down and walk normal! I'm 6'1" and 285, he was 5'7" and 155. He saw the rage come over my face so he ran out of the room scared shitless. He then put in his report I got very angry and offended him by my out-burst. He is lucky I couldn't catch him!
A year later I had bladder issues; a year later I had problems with small motor control; a year later he dxd me with dropped foot syndrome. Still never put everything together and I didn't know that they were all related.
He sent me to a neuro who ran all the tests, nerve conduction, EMG, even a $500 blood test for HNPP - hereditary neuropathy with pressure palsies. Sent me for MRI of back, and ultrasound of my legs to check blood flow to my legs. Everything was normal.
He even told me that he ruled out MS because I didn't have any eye pain. He also said that my MRI was normal. He sent to PT which I did for 2 months, 3x/week, I didn't see any results, got depressed and quit PT. Neuro said there wasn't anything more he could do for me.
Was talking to an acquaintance who said my neuro didn't have a very good reputation, and gave me the name of her neuro at a well-respected teaching hospital. Saw him in May 2009, he saw "white flashes" on the very same MRI that my first neuro had said was normal, had MRI's with and without contrast on June 12, had spinal tap on August 11, was dxd August 19, 2009.
He told me when I saw him in July that he wanted to do a spinal tap and I am so fortunate that he told me what he suspected, so when he called me with the news I wasn't totally in shock.
NOW THAT I'VE READ THAT I DO HAVE THAT & HYPNIC JERK TOO! I ESP.... HAVE PROBLEMS WITH HYPNIC JERK! I HATE IT!!!
BUT I WAS GOING TO SAY--TO BE FUNNY HERE--THAT:
I, & PROBABLY JUST ABOUT EVERYBODY ELSE HERE HAVE "EXPLODING HEAD SYMDROME'" JUST/FROM SEEING TOO MANY DAMNED STUPID, IDIOTIC, DUMB, ARROGANT, JERK-ASS DOCTORS THAT DON'T KNOW THEIR ASS FROM A HOLE IN THE GROUND!!!??? LOL LOL LOL :)
I LOVE THAT TITLE!!!!! WAIT TIL I TELL MY BEST FRIEND THAT I HAVE EXPLODING HEAD SYMDROME!!!! MUST BE WHAT MS IS CALLED NOW!!!! LOL :)
Seems stupid now but I bought the doc's explanation.