Multiple Sclerosis (MS) Support Group

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allicat9375 07/14/2013

A few months ago I finished up my 20 physical therapy appointments, and I was walking really well. Then I stopped moving. All I was doing was sitting on my bed watching shows on my laptop. Needles to say my walking has become difficult. I have all the tools I need to walk better and I wasn't doing them.

Plus this week I was using my wheelchair just because I was being lazy. That my walking with my arm crutches very difficult. So tonight I decided to get up and move.

So tonight I took a walk around my court yard. I only went around once,but it's a start. I also did some stretching. I'm going to try to do it all over again tomorrow night. I also found some awesome seated chair exercises on line. I just need to do them.

I guess it's true when they say use it or loose it.

Keep moving with me everyone

Orsova 07/15/2013

Agree100%

I started walking for exercise a couple of years ago. I started small - about 10 minutes a day then built it up so I now do about 40 minutes.

It is often hard work but the benefits are wide ranging - and not just for the effects of MS.

I am very lucky because my personal trainer will not let me miss a single day. (She has 4 legs and a tail ! )

RiS 07/15/2013

Use it or lose it is is true. I can't walk so in a wheelchair but every day I do exercises, and also sometimes wheelchair yoga. I find that I'm not as stiff the next day and I think I have the same personal trainer as Oraova LOL

djbritt 07/15/2013

Good for you! Start small and work your way up. I know it is hard but try to continue to do a little each day. Good luck!!

lchoppel 07/15/2013

You will be able to move soon if you continue to exercise as you describe. I also need to exercise myself and walk more, but it is so hot outside I have no desire. You are completely right, use it or lose it. Good luck to you!

allicat9375 07/15/2013

Today I did some walking into the hospital for my Tysabri and back to my car. It may have been too much because on my way to the bathroom my knee gave out and I dropped to the floor. I was able get off the floor so that was good.

Tomorrow I will do some PT and some seated chair exercise

wisconsinteacher 07/16/2013

My dogs won't leave me alone until I take them to walk at the dog park. They bump and pester me until I have to get up and take them or go crazy. It's always a good thing because the walk is up and down and the ground is uneven which requires some balance work. I go early so getting up is a challenge, but my dogs get me moving! I've done gardening as well this summer. I thought I would die after only an hour the first day, but I did adjust and found the bending and stooping to be a surprisingly good workout!

allicat9375 07/16/2013

see my parents said I should get a dog when I moved in, but I got a cat instead. I though walking the dog would be too much. From hearing people talk about walking their dog it would have been a better choice :)

allicat9375 07/16/2013

So today I feel trying to sit on my bed. Last night my knee gave out so I fell last night too :( The great thing is that I was able to get up without calling 911 like I had to 2 weeks ago.

I really see the need for continuing to do my physical therapy and exercise. Mobility is the key for me any way.

I hope everyone moved today!

Anne8 07/16/2013

I still struggle with the idea of walking for exercise (imposed walking when I was a kid makes me think that walking is to get somewhere only), but everyone is right that we need not to rust!
I have been doing less walking the last few months because I have been unemployed and therefore not going to work every day.
So, I now need to work on upping my exercising this summer!

allicat9375 07/18/2013

Today I just did stretching several different time during the day. I was going to take a walk tonight, but after my Tysabri infusion I was really tired and dizzy today.

Hopefully I will get some exercise and PT in today.

allicat9375 07/18/2013

I would love to have some motivation buddies. Someone to check in and/or motivate each other.

allicat9375 07/20/2013

This morning my legs gave out as I was trying to go to the bathroom. I wasn't able to get up until my bladder gave out all over the floor. So I had to clean it up. I think I may have taking too much Tylenol PM last night. GRRRRR

RiS 07/20/2013

Do what I do when I fall-say a few choice words while crying, then try to get up or call for help if possible. It sucks so much but (like everyone tells me but don't get why) it is what it is! (Of course, a few choice words come into my mind)!

Anne8 07/20/2013

I find that I have to pee a couple of times in the night, and more often than not I am a little overheated or something and don't make it even the short distance to the toilet. So I don't fight it. I leave a container on my side of the bed, and if I think I won't make it, I relieve myself there and then, and deal with it in the morning.

deleted_user 12/27/2013

A slow start is better than no start! It is good that you are walking again, have you thought of using a medical walker or cane instead of the wheelchair? That would allow more movement and stimulate the physical therapy sessions you had, yet you still have some support. I found some nice options here http://www.smithmedicalequipmentokc.com/. Wish you all the best!

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