Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
This community is a place where members can discuss current events and weigh in on what's going on in the world.
Thanks again!
Kristi
it has been gone now for a few month's.
mamak,the symptom's you describe sound like gerd aka acid reflux. i have that awful with the symptom's mama feel's.they found out through a couple of test's.
i wish you load's of luck.diane
They did a couple of tests and an EKG to make sure I wasn't having a heart attack or problems with organs. In my case they said said it could be the MS Hug, Anxiety or side effects of Copaxone.
Take your BP, make sure it is not too high and make sure you are drinking plenty of water .Hope you feel better.
So if we are talking about getting a hug from a wrestler...the "MS hug" is a great name for it cause that's what it feels like.
I found this website where you can design T-shirts of whatever kind you like & I actually made an MS hug one awhile back. It's a picture of a huge, scary looking knight guy reaching out to grab you & all up & down the shirt I put..."Quit hugging me MS, I'm trying to break up with you!" Hehe!
Take care,
Stay sane!
but it felt different than the plurisy but similar. am i making any sense?
Hey, If you don't keep your sense of humor & spirit through all this crap all that happens is you become a bitter old crone & that stress doesn't help the situation much, if at all. Just my opinion.
But sure, there are times having MS sucks more than usual symptom wise, BUT you gotta keep your spirit & don't forget who you truly are & not let MS take you down. You gotta try & rise above as much as is possible. Sure, some days are less possible then others symptom wise, but never loose yourself & your spirit...Never forget yourself.
That's how I feel about it!
Take care,
Stay sane!
I was Dx with Pleurisy (confirmed with X-rays) 4 years ago...then got it again about 6 months later. It was so difficult to breathe that I missed several days of work (1st incident was worse)...as I couldn't even hardly move! Then...about a year later...I thought I had it again (although, it felt somewhat different)...only it wasn't as severe...so, I refrained from going to the Dr. & was hoping that I could fight it on my own...& it did go away...about 6 weeks later (Pleurisy usually requires antibiotics/steroids &/or anti-inflammatory meds).
I continued to get this same "severe/crushing chest pain" over the next few years...along with the sensation that "something" was squeezing my chest area/rib cage...& other times, more like a tons of bricks sitting on my chest. However, my last 2 "severe" incidents (as I'm not counting my mild case of it now) that I experienced were very excruciating & frightening! The "severe" case in the summer of 2009 sent me running to my Rheumy. She did X-rays, & assured me that it was NOT Pleurisy...gave me Prednisone & antibiotics anyways...only it did NOTHING for it!! I simply had to wait it out...for several months. This incident gave me horrible PAIN in my "right-side" chest & back area...along with severe nausea & sudden loss of appetite (lost more weight again)!
Then, this past summer of 2010 (May-June)...I experienced this again...only it was in the MIDDLE of my chest...associated, once again...with SEVERE PAIN, Nausea, & loss of appetite...in addition to extreme dizziness & numbness of arms! My brother rushed me to the ER next morning...after having been up SICK all night! ER at hospital thought I was having a heart attack as well...rushed me right in! EKG, blood work, X-rays...ALL confirmed that it was NOT Pleurisy...OR cardiac arrest. Sent me home with a Rx for anxiety (my Zanaflex worked better!)...& suggested I see another Neuro, after hearing my health history...only I couldn't afford one & had NO health insurance.
I've been researching this for 4 years now...as I've been Dx with Fibromyalgia...but NOT MS! I've also had tons of other diseases ruled out...Lupus, SjS, Wegener's, Parkinson's, etc... Left ONLY with Dx of Fibro. However, Fibro patients don't complain of the "crushing/squeezing" feeling, severe nausea, or loss of appetite...when dealing with Costrochondritis...only SEVERE PAIN! So...whether or not I've been experiencing this MS HUG is questionable at this point...since I'm not Dx with MS. The only thing I DO know for certain...is that the last few "severe" cases have NOT been Pleurisy...confirmed by X-rays!
It's just that my symptoms seem to fit "MS Hug"...moreso than the Costochondritis...but IDK for sure!? I agree...it affects everyone differently. I also posted a link several years ago...(as I was freaking out & asking questions)...describing the MS Hug as excrutiatingly painful for some...while mild for others. Idk where that link is now?...would just have to research it.
I also have to agree with Antilyn...hard to know what's a REAL emergency...& what isn't anymore!! I finally realized that running to the ER for every "life-threatening" feeling...just yields more complaints & criticism from family members!!
If I ever DO have a heart attack...I guess I'll just DIE saying..."Darn you MS hug (or WHATEVER you are?)...go away!!!" Gee...what an epitaph THAT would be!!
"Here lies XXX...died from a Heart Attack...thinking he/she was
being "hugged" to death!"
Funny...but NOT so funny! Scary in fact!
~tj