Multiple Sclerosis (MS) Support Group

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mri results interesting.

sherizi
sherizi
About 8 months ago, I had a neuro who had me go in for an mri. The results were proof of my being in a "Rebound Effect", as I had stopped my medication. I had 30 new active lesions on the brain at that time.

I have since switched to another dr., and they had me get another mri just this month. Now, the results show "no new active lesions" on the brain. Wow.
Well, I know I haven't had any new relapses this past year. So, that is good.

Now...my issue is this. I am debating about getting back onto a medication. Doc want to put me on Copaxone. I was on Tysabri, and that is my first choice. However, now that I know I have "no new active lesions", I am just wondering if I should even go onto a med at this time? Or should I wait until something pops up?
Should I go ahead and get on a med, to keep the disease from going ahead and messing with me?

What do you all think on this?
I don't really know just what to think on this.
I like the fact that the mri shows me doing well right now, but, knowing this disease is random, I don't really want to take chances of it jumping ahead and sending me into a relapse and then not having any med's working to slow things down.

Sorry this was a long post. I am just in a bit of a quandary with all this.
Thanks for any imput on this.
lchoppel
lchoppel
The fact that you were on Tysabri, and your MRI showed no new lesions, indicates to me that the Tysabri was WORKING.

I'm in a similar situation, currently not taking any MS DMD's. As suggested by my neuro, I'm going to wait until BG-12 comes out in the fall and then start that probably. I too just stopped Tysabri, and it stays in your "system" for months after you stop it, so my doctor thinks I will be protected during the time that I am not taking any DMD's. I feel very comfortable with this plan. I didn't notice my MS symptoms improving during the time I was on Tysabri, and I know that Tysabri doesn't improve symptoms only stabilizes the disease progression, but I'm not worried about being on any medication. I think my doctor will probably order another MRI in the fall to check for disease progression if any.
deleted_user
deleted_user
Id get back on meds, why give MS a chance to act up :) You might feel fine right now but what if you wake up tomorrow and MS decided it was ready for a fight
princessgwenda
princessgwenda
I agree with Zombychyk. I'd be neurvous about MS rearin it's ugly head, feircely. I would start somethin up to try and keep the beast calm.

Good luck!
dxat59
dxat59
Why take chances? Better to be safe than sorry. You have probably been coasting along on a residual effect like Lynn said and that won't last forever. Ms could come roaring back with a vengeance when you least expect it.

Gentle hugs, Linda
sherizi
sherizi
thank you friends!
I have been thinking about it, and praying too...and talking with other MS'er's also. I do think I will be mentioning to my Neuro this week, that I would like to go ahead and get back on the Tysabri.
The more I think about it, the more I want to.

I know the risks are there for the PML, but, I am just going to trust that the risks are there in ignoring things too! I don't want to risk not getting back on a "working" medication!
Thanks all! I appreciate your comments!
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