A lot of doctors won't prescribe it because there isn't enough information about it and MS. My neurologist said he will not prescribe it because he has seen it be proven ineffective for his patients. However, he will still support me in taking it if I can find another doctor to prescribe it.

My GP prescibed LDN when I referred her to this info online;

LDNINFO.ORG has something convincing written by a neorologist
(look under multiple sclerosis)

She says that 3mg dose of LDN is so small that it is almost
homeopathic. So, no harm - why not? I never even see a neurologist & learned about it on DS,

I saw somewhere online where it can be obtained from the US

I went to a confernce regarding this yesterday. From what Dr. Mosses from Vandervilt said last night, their is not a lot of infomation reagarding results of LDN. He stated that he did not have a problem with his patients taking LDN but he asked them to take with crab drugs also.

with copaxone is okay, not as good with the interferons, they interfere

7 years ago I could see lame excuses

now if I doc don't know much about, there's world-wide information available for them to research it

there are patents they can review

there are pharmacists they can consult

and there are hundreds of thousands of people taking it nowadays for all sorts of diseases, people going into remission and stable DAILY

who loses? not the doctor, their Salary remains High with all the drug reps pushing their drugs and benefits on them


good luck to you, it's your health

http://www.dailystrength.org/groups/ldn is our group here

http://www.larrygc.com/mystory is my story

http://www.ldners.org is a site all about it

http://www.ldnresearchtrust.org is a site in the UK

LDN is a generic compound and nobody is going to make any money on it... Further, intensive studies have not been done on it, and it's ability to help people with MS. My neuro who I trust a great deal will not prescribe LDN. YES, you can get other doctors who will, but after a horrible time with Betaseron over more than 8 years, I don't wish to be a lab rat--I'll take tried and true and have had great luck with Copaxone.

Sorry, more than 10 words... I think it's all about the money that will not be made with a generic compound. xoxoxo Cj (Cindyjo)

9 years of human guinea pigs with all types of diseases is good enough for me. my dad and bro are without question still alive, in remission, and stable, with their diseases

and 6 MRIs show my progression stopped since starting, all my MRIs look like static photographs after 2003, prior showed progression

Not in 10 words or less, but a listing of less than 10. I thought it was because(its too complicated for 1o words or less)....

1- there are no objective studies proving it is beneficial its just by word of mouth anecdotal evidence.

2. It improves(strengthens) the immune and the current theory of MS is its an autoimmune disease and the currently FDA approved MS therapies weaken the immune system....except for copaxone, so it works against most approved therapies.

Copaxone just gives more mylen substance for the immune system to attack instead of the real thing... so copaxone just gives the LDN strengthened immune system more to work on. Kind of counter productive. With the other meds it outright weakens their effect as their(MS meds) weakens LDN--they work against each other. Its just stupid to prescribe together.

3. It is used as a drug to help with alcohol/drug addiction..
so its not clear if the anecdotal evidence is "real" or is a feel good drug making people "feel better" while their physical decline from MS continues?

Doc's are fighting to prevent or slow the real physical decline, not prescribing for people to feel good while it is happening. That would violate the code of ethics they took when they got their degree. Practicing medicine would be so much easier if they only had to make people "feel good" through any illness but instead they have to try to prevent real physical damage from disease.

if copaxone are decoys, and you're NOT under attack (which is most of the time), then WHERE do the decoys go?


the rest of your post is just nonsense to me

my dad's CT scans don't lie, his tumors are SHRINKING and all he's on is LDN, his oncologists NEVER saw these results in any other patient in 25 years

I have enough medical proof of it working

I don't care what others think, their failing health and stupidity is not my problem

what you need to realize is LDN has NOTHING TO DO WITH MS

it has to do with orchestrating the immune system, and enough brains have researched it for me, the anti people are just ignorant and don't really want to know or they'd do their own research

my brother was dying with sarcoidosis, within months he went into remission, stable, and back to playing softball.

This is not an MS issue, and all the suppositions are 7 years ago, those who've learned have learned a lot in 7 years

Dr. Larry... Please understand that your experience with LDN is wonderful for YOU and YOUR FAMILY... I'm happy for you!!! The fact is that it is sometimes difficult for an individual patient to get what they think is the best medicine because we are not doctors with degrees hanging on the wall...

So be it... I do know that methadone did not help my nephew to kick his drug habit even after 6 years of treating (LDN is a smaller dose of the natroxone from which methadone is made)... You know as well as I that each person is different with their MS... We all tolerate things differently...

Heck, I think it is time to quit worrying about a man having a 4 hour erection and start putting our energies into cures for some of the diseases that need to be cured... Just my opinion, mind you... Trust me, after nearly 24 years with MS and a life that has be forced to be changed profoundly, I'm ready for a magick remedy! xoxoxo Cj

like I'm living in a world with 4 other people? I know hundreds and hundreds, if not thousands, of all sorts of diseases. Breast Cancer, Fibro, Crohn's, AUTISM & ASPERGERS, Parkinsons, Lupus, Sarcoidsis, Hep C, Psoriasis, UC, CLL, and the list goes on as the days go by.

We're not in 2003 any more. And it's not just MS.

If someone doesn't benefit from it, oh well. If someone hasn't tried it or tried to get it, well, that's their problem too. It's growing and growing fast AROUND THE WORLD.

It's the biggest medical breakthrough since penicillin. (Dr. Skip's quote, not mine)

My food allergies are gone

I haven't even gotten a Cold since 2003 and I used to get sick quite often

Nothing anyone can say can take away from Reality. Talk all the virtual you want.

and the younger a person is, the sooner they should start it

it just breaks my heart seeing young 20s KIDS being tortured by meds that aren't helping them and making them worse

Breaks My Heart

Ampyra--Reply 3 & 4 in this thread started bt LarryLDN.

Ampyra was not developed by a pharmaceutical company, people were obtaining it from compounding pharmacies as 4-ap
A pharmaceutical company saw the benefit in 4 ap and foot the bill to get FDA approval put it in a pill and will market it for a lot if money. No one has seen equal promise in LDN, not even the LDN users themselves have banded togetrher to get it approved by the FDA.

The main argument is that since LDN wasn't developed by a drug company they can't make money off it and that is why it is not approved. The story of Amyra disproved that argument. Whether a drug company develops it or not, if a drug company can make money of it, they will find a way to market it. LDN has been around for a while, no one saw any benefit in marketing it, like they did with Ampyra.

http://www.dailystrength.org/c/Multiple_Sclerosis_MS/forum/8937569-fda-approves-ampyra

weak argument, who cares

unless you work for big pharma and are paid to be here

and as long as the many I know remain stable, who cares what anyone else says, bash all you want