This stuff makes you feel nuts nervous angry and not sleep now I am weak and don't walk well at all is this normal?

I had a bad time with steroids in the past...I don't much like then now, but this last time was much better....I think sleep is the key to making them livable. Take some benadryl as a sleep aide before the infusion & mostly snooze throuugh it. Take some benadryl at night again as a sleep aid no later that 10PM at night & the earlier the better..

Steroids have 3 main side affects for me, insomnia, the munchies--since I try to keep my weight under control that is upsetting for me too. and the EMOTIONAL ROLLARE COASTER!!!!

After my first 5 day infusion I refused to do it because of that emotional rollar coaster thing. I refused twice. Getting oral instead once and doing 1 day instead of 5 days. This time I agreed to do the 5 days, thinking I had overracted to that first time...the emotions were terrible after I had lost my job & was emotional to begin with...

This time I think they gave me some benadryl in the infusion & I slept through it most of the 5 days. The first day I thought I might not get insomnia, by 3AM I knew I was gonna get it....but after midnight its too late to do anything about it...so I just went without sleep the first day. The 2nd day I took benadryl at 10 PM and I did sleep. The tird night the same, benadryl at 10 PM again. The 4th night gewtting sleep was so nice, I slept through the infusion and then I slept so well at night...that I just took the benadryl around 6 pm dutriong the evening news. The next morning I felt better than ever & did all kinds of houssework done before the infusion.

I kept taking benadryl as a sleep aid through the oral taper..and stopped when I was totally done with steroids.

How soon you get a positive benefit from the steroids varies betwwen individuals and varies within the same individual.

The first 3 times the next day. This time I'm waiting on it. I got some benefits right away but not all I wanted.

My doc scheduled a follow up appointment in 6 weeks.....so I think thats about the tame frame of patience needed for steroid response.

He also had me take 2 Zantac 150 a day? I'm not certain why, I han never copmplained about an upset stomache, but I did like taking it....my stomache was a little upset before I aite...and with zantach 150 it wasnt at all. He said to take them during the IV and through the oral taper dose....after my refusing the last few times they were not gonna allow me a reason to refuse it again after this time...but what can I say. When a person does not have a job, they are not at risk for losing it...so I don't think I will ever have quite the emotional rollar coaster I had the first time...

no one at work knows aas I am afraid they will can me if they know hiding this from the world. thanks for info not eating and gained weight everything taste like tin

Low Salt - High potassium when on steroids.

High Potassium foods for me are bananas, raisins and potatoes.
I microwave potatoes cut into quarters then put ketchup on them.
I avoid deep fried foods because of the weight gain.

thanks for info my eye felted crossed today no fried food for me make me sick not a good day today 4 more days to go maybe oral steroids not good either

I hate to be the bearer of bad news, the side affects of insomonia, munchies and the roller coaster emotions build through out the steroid, IV &oral.

After the first day this time, I told the nurse the 3 main side affects for me are insomnia, munchies and the emotional roller coaster. I told her I was going to go home & battle insomnia and the munchies today, and that she would know how I was doing on the emotional roller coaster in 4 more days.

Take something to sleep, no later that 10PM...earlier is ok. That really made a difference for me this time. And the side affects do build through out the IV & oral. Some people have said the oral is the worst for side affects. IV is the worst for me.

thanks weaning myself off oral faster and not hungry at all food taste awful

How many days of each did you have? 5 days of IV for me followed by 16 days of oral the first time and 6 days of oral this time? I'm looking at the date of your post saying you did your first IV, it can't have been very long? The 20th posted and today the 23? This does not seem like a really big en devour. Perhaps that is why the side affect were so much more significant for me..I did 1 day of IV and had no issues, like I told the nurse she will see how it is after the 4th day of daily IVs. It really sounds like you did not have as many days & I suspect at lower doses too.