Hey i had 2 bouts of ON like 7 1/2 years ago, was given solumedrol. and not once since, there is hope. Scary i know.. im with you..

Had my last dose of methylpred on Monday & could barely stay awake for tea I was so tired.
Yesterday I woke up by 8am & had energy. Got washing done, hung up (inside) & in dryer & then even put away!
Did some tidy up (had lost something again), done by 10.30!

Home care came so I had a rest (watched a dvd) then had a bit of time so organised dosette boxes for next 2 weeks & started packing caravan stuff. I had a lot of that done before I had to go to another appt in the afternoon.

Had shoulder injection done (cant remember name), done with ultrasound, dye, saline & cortisone. Was numb after so ok till night time. Then every time I moved I woke up (typical).

Yesterday the hunger hit as well so eating & dinking lots & its the same today. I had energy at start of day so have taken more stuff to the caravan (in backyard) & ticking things off my list to what needs to be done. Some wont go till Friday. I probably had 2 hours of energy where I felt like I was almost running (not literally) but got a lot done. Then stopped again.

We are taking our caravan to Shepparton today & setting it up so we can do it in daylight. We will come home tonight as David is working next 2 days. That way as soon as he gets home friday night we can basically go once he is changed & coffee etc. We wont be towing at night which is good & it will be set up ready for us. We both have Monday off so will stay till Tuesday so it will be a good break.
Another benefit is we will beat most of the others (going with Jayco club) so be able to pick our site, hopefully shady & easy access to loo, I like level path so I can use theres in the day & only ours at night. It will cost us for 2 more nights & petrol too of course but considering we originally were going for 2 weeks holidays that is not an issue (for once).
Shepparton has ardmona/spc of course so we intend to do a good stock up as save on all the fruits, in jelly, juice & cyrups & lots of other foods too. It has moved into Shepparton itself so will be good to see the new shop set up too.

I am so glad I had the treatments so that I will be able to enjoy the break & have energy (hopeful) for most of it. We take my scooter & walker so use them so I am able to enjoy it & i will have neck ties & my cooler vest with us as well as it is going to be in 30's every day.
We are having a multicultural dinner on the Saturday night instead of going out so that should be fun. We will do our own main meal (allergies etc) but sharing desert & still being part of the group of course.

Sorry for long post - can always tell when cortisone kicks in LOL. Wanted to share the good news too.

Breathing in, breathing out, I return to my own blessed center.
I am ready to receive miracles!

I sounds like after some bad treatment, things are going well. I am so glad. There is nothing like having someone listen and actually pay attention and actually help you to make you feel better, let alone the right treatments. It is wonderful that you can get back to doing the things you want to, and are feeling better.