Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
diag2011
I don't have a lot of support in my every day life, so I thought I'd check out this website after a friend recommended it to me.
Right now, my biggest challenges are muscle tightness/spasms, fatigue, thinking problems and short term memory impairment. Because of the last two, I feel like people are quick to think I'm slow, although I am not.
I have friends in my everyday life, but none that relate to me or understand anything I'm going through. They think when I'm tired I should just be able to work through it until it passes like they do, but I really struggle to keep my eyes open. My tired is not the same as their tired but they can't understand that.
They think it's funny that I get scared when I drive because my leg bounces on the brake and the gas when I push them. I'm afraid one day it's going to happen and bounce off the correct pedal and onto the wrong one. Maybe I shouldn't drive anymore..but I'm only 30.
I love my friends and I don't hold it against them, but I need some real support. I need a place to vent my frustrations or share my joys with people who actually get what is happening to me.
I hope you all are doing fine. -A
Right now, my biggest challenges are muscle tightness/spasms, fatigue, thinking problems and short term memory impairment. Because of the last two, I feel like people are quick to think I'm slow, although I am not.
I have friends in my everyday life, but none that relate to me or understand anything I'm going through. They think when I'm tired I should just be able to work through it until it passes like they do, but I really struggle to keep my eyes open. My tired is not the same as their tired but they can't understand that.
They think it's funny that I get scared when I drive because my leg bounces on the brake and the gas when I push them. I'm afraid one day it's going to happen and bounce off the correct pedal and onto the wrong one. Maybe I shouldn't drive anymore..but I'm only 30.
I love my friends and I don't hold it against them, but I need some real support. I need a place to vent my frustrations or share my joys with people who actually get what is happening to me.
I hope you all are doing fine. -A
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Gentle hugs, Linda
So, settle in, explore DS, and don't hesitate to reach out anytime. You will be surprised by the nurturing you can get here from strangers that you can't get from friends or sometimes, family.
I don't always talk about my MS, but when I do, I come here. ;-)
I would be very careful with your driving, go where you feel safe & keep down the speed. I stopped driving about five years ago, and it bothers me everyday, still. Consider very carefully before deciding to stop. It takes away independence that would be hard to get back.
a) expain to the family exactly what happens with MS and let them know it's ok to ask... (anyone who wouldn't be on board with that, I'd expect nothing less than respect for what I need - if you can't get that... you have to find time for yourself... groups like this... community groups.
b) I barely have muscle tightness or spasms when I'm up on my magnesium. I use magnesium citrate and start out with 200 mg once a day for a week, go up to 2 pills the next week (bedtime) and on the third week, I add one between meals. I've read lots of articles on magnesium, "the forgotten mineral." Orchestrates over 300 chemical reactions in the body. Works in synergy with another of the big three minerals... calcium. Calcium allows the muscles to flex and tighten while Magnesium allows them to relax again. As you can tell, I believe this is extremely helpful.
c) I keep a positive attitude as much as I can. Not in denial for having MS but believe it's always best to keep doing as much as possible or comfortable. I'd get physical therapy before ever dreaming of not driving... I'd definitely try magnesium before giving up driving as well.
Continued reading seems provide continued evidence for the healthy lifestyle with diet and exercise. The Wahls Protocol seems to explain quite a bit if you haven't read it yet.
Glad you're hear with us... There is life after diagnosis and we can do it our way.
This is the place! You can make friends, ask questions and get good answers! You can also find scriptures, receipes and a good joke!
WELCOME!!