Multiple Sclerosis (MS) Support Group

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AusSue 03/15/2008

I have just read some of the posts on here & even replied to a couple.
I have decided that this board actually adds stress to me with all the snide comments & people then starting another thread based on a response someone had. I know I am one of the few Aussies on this board & maybe people in other countries do deal with issues differntly but I expected this board would be more supportive - especially to new members & if they are upset by a post explain or apologise for any comment that might have offended. I know there was an apology on one post but then that was ruined by a new post that person started.
This is my opinion only of course but I am not prepared to be part of this school childrens behaviour (whih unfortunately does continue in adults).
I will check incase anyone messages me for a few days as i have made some friends on here & if they wish I will stay in contact with them through other email.
Hope everyone can find a more supportive way of posting in the future but I am not hanging around to wait & see.
Goddbye & Goodluck to all
AusSue

deleted_user 03/15/2008

oh don't go as im so out of here. support is that what this is ? whining is more like it oh poor me you can't take the truth about MS. my husband posted here tonight and so did my son go read what they say. oh sorry you just want to hear IT"S GOING TO BE OK. good luck with that

AusSue 03/15/2008

I dont want to hear "Its going to be ok" as that is not what support & understanding is to my way of thinking. Considering I have gone frm being normal, able to d thingsphysically, working full time & studying at night & doing volunteer work as well as going out to now working 3 days - 15 hours, husing a walker all the time, scooter to get about outside, & cant do a lot of things I used to do I know that everything is going to be ok is not true, but it can still be ok with a positive outlook & adjustments.
Just shows how posts can be misunderstood on here

deleted_user 03/15/2008

I'm sorry you feel this way, Aussue. Everyone must find their path in life. Take care of yourself. If you don't mind, can I say it? Don't forget to throw another shrimp on the barbie.

deleted_user 03/15/2008

And also, G'Day, mate!

LarryLDN 03/15/2008

Best of luck to ya. There are many MS support groups out there, new ones show up all the time, old ones just lay dormant with many subscribers. There's many private ones too.

take care ;)

deleted_user 03/15/2008

Ausue,
We are all just people trying to help other people in our own way. You do not have to talk to or read other people who you do not get along with.
I think you may have taken offense too easy.
We are trying to be truthful here in a loving way. That is like a doctor saying you have MS but cheer up you are not dying.
It is hard to always be upbeat and strong. It is hard to be in depair over something we can't do anymore. It is hard to not be scared for the future. We all have these stages and we need the help of those who understand without judging harshly.
By you saying you will not be hanging around waiting for more supportive postings, you have if fact judged us not to be worthy of your presence, as you do know how to post.
Teach us then by example.

I am human too and you have just offended me.
I have MS.
We all do.
We can not always be on our best behavior.
Sorry, I am getting emotional now.
I love it here at DS.
I want to defend it as it is a part of me.

Sunnygurl 03/15/2008

See, this is the crap I can't deal with. The talking out of two sides of your mouth. Go read kay's Journal. You think we all can't see this and not take offense??

In fact I'll paste it here in case she tries to delete it. Because I'm tired of the bullshit. I have seen this on many hugs and journals. So let's be real now.. Sue isn't making this stuff up.

"oh FUCK THESE PPL FUCKEN HAVE KIDS ? thank God my kids have a brain in their heads. just like my 16 year old son said one big pity party he also asks are you here for help or pity?"

Does that sound like someone who is being supportive??

deleted_user 03/15/2008

see ya, good luck.

MelissaJo 03/15/2008

ah, i hate to respond to this thread, as i fear that it will just fuel more bickering or debating, or whatnot, but i have to agree with Sunnygurl on this one. What Kay wrote in her journal isn't what i'm here for at all. i don't need more pity, really. part of support for me though is having to deal with all of the emotions that come from hearing something like 'you have MS'.

if i'm having a shitty day and want to vent about something, so be it. i can deal with the reality of MS, but sometimes my emotions get the best of me and i feel like crap. bottom line. finding out is like a grieving thing, no? and kay, maybe you were diagnosed years and years ago and have come to terms with it. me, it's been three months and i'm still reeling.

and AusSue, sorry to see you go. Though, i can understand why you would want to some days. well, there are people here that will miss your comments and wish you the best!

deleted_user 03/15/2008

noone ever starts an argument unless they mean what they say and the apologies after the fact...downright hilarious !its all a lie otherwise they would have never beaked off in the first place .

feisty 03/15/2008

AusSue,

I'm so sorry that you haven't felt this site helpful. I had many wonderful months here before I decided, as you have, that I need to move on. Please take care.

As far as peoples journals go...IT'S THEIR JOURNAL! What right does anyone have to post parts of a persons journal on the PUBLIC BOARD? Just my opinion.

Sunnygurl 03/15/2008

If this was a private Journal, or one just "for friends", then I wouldn't have been able to post it. You know very well I was trying to make a point here, Feisty. Something that has been going on for some months. If you can read a post, you can read a journal. It can hurt just as badly as if it was in a thread, or if it was just a "thought". There is NO excuse for someone writing something like that even if it was on their page. I find it shocking that someone would even think to put something like that in a journal to begin with. Sure, we can write anything we want in a Journal, but you can also say things without using inflammatory language. This is the entire theme of complaint. We need respect for one another on this board. When you read that part I posted how did it make you feel? Don't think about who it came from, or if it was in a journal or not. Did it make you smile or feel good in general?

Sherie 03/15/2008

I agree feisty, that's just fueling the flame. . .I've learned my lesson. And anyone who read what I just recently read what I went through with Banff, should have respect for privacy. This will not end up pretty. Ausue...this is NOT about you hon. Pay no attention to any further posts. You do what you feel comfortable with.

Someone has just declared war. Take covor.

Best wishes and best of luck.

deleted_user 03/15/2008

LOL feisty i was just putting up a post about the same thing

Sunnygurl 03/15/2008

Let me make a note here:

It's ok to be mean and nasty in your Journal, but in posts we have to be fake and pretend we care.

Ok, thanks, I got it.. lol What a crock *rolls eyes*

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