Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
Arany
My MS seemed dormant for the last five years. About a year ago, I went to the gym to start running again (I stopped because I was pregnant), and my legs turned into noodles after 5 minutes. I got off the treadmill never to return. I still walked my dog for over an hour every day, but as the months passed, I became weaker and more tired. My lower body felt like a marionette puppet in June, and at the same time we found a lesion. I took prednisone and felt 90% better. Around september I started to feel a decline again. Christmas I stopped walking around the block. New Year's weekend I stopped walking outside my house without my husband close by. I can still walk, but my legs tire rather quickly. Thank goodness for my baby stroller!
I started Betaseron 3 weeks ago, and it seems to be going fine--not too many reactions. My energy level has increased. My legs have stayed the same. It is difficult to find decent MS medical care because I live overseas (language barrier). I can get any drug I want, but no information. My doctor prescribed Beta, and my husband and I had to learn how to use the drug by watching a youtube video. Everything is fine--not complaining. I do, however, have a few questions since my neurologist does not work with MS patients. This is all new to me. My questions may be immature, but I would love feedback.
Questions:
*Is it possible my decline over the last several months could be a relapse? Can relapses be this aggressive? My husband has hope. My body feels so mangled and useless it's hard to see an end to this.
*Are there negative interactions between Beta and Prednisone? I think I might take P to rule out another exacerbation. I don't know if this is a good idea, but I don't know what else to do.
I have many more questions, but these are my top two. Sorry for the long introduction. No one wants to hear it, but maybe it will help find me the answers I'm looking for.
Thanks!
I started Betaseron 3 weeks ago, and it seems to be going fine--not too many reactions. My energy level has increased. My legs have stayed the same. It is difficult to find decent MS medical care because I live overseas (language barrier). I can get any drug I want, but no information. My doctor prescribed Beta, and my husband and I had to learn how to use the drug by watching a youtube video. Everything is fine--not complaining. I do, however, have a few questions since my neurologist does not work with MS patients. This is all new to me. My questions may be immature, but I would love feedback.
Questions:
*Is it possible my decline over the last several months could be a relapse? Can relapses be this aggressive? My husband has hope. My body feels so mangled and useless it's hard to see an end to this.
*Are there negative interactions between Beta and Prednisone? I think I might take P to rule out another exacerbation. I don't know if this is a good idea, but I don't know what else to do.
I have many more questions, but these are my top two. Sorry for the long introduction. No one wants to hear it, but maybe it will help find me the answers I'm looking for.
Thanks!
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Im glad you are feeling better! Let me know if you ever have questions. Please do try to find a support group. The language barrier can be rough but German is not all that bad and you will learn it very quickly if you have friends that speak German that is how I learned!
Mach's gut!
You have found, as I did, that this is a wonderful, safe place to get advice and support.
I have learned more at this site than from my two neuros.
The folks here have been very kind and helpful.