I take Avonex & it makes me very sick for about 12 hrs & then I'm fatigued for a whole day & may still be a little sick & fatigued on the following day too. It sucks that the treatment is just like the disease, only I know "when" I'm going to be sick from the meds. I feel like I'm on a rollercoaster from hell!
I hope u start feeling better soon, tho- big hugs to u!

Unexpected naps have just become a part of my life. I wake to find the family staring at me. I just doze off right in the middle of watching TV or a lull in conversation. I used to be so vibrant and work umpteen hours a day. I refuse to get old so I know it's not that.

Hope you get your Mojoe back soon.

Gentle hugs, Linda

Sorry you're going through this. Have you made any changes to diet and exercise habits? It seems to help me a whole lot. I don't take anything other than supplements for over a year now. WHen I over do it, I do get very fatigued but I think I'm better off without all the pharma's in my system. Hope you feel spunkier real soon.

I'm sorry to hear that you are having a hard time. Hang in there! Remember, when you feel that you've hit the bottom....up is the only way left to go!!

I'm with you too oleblue since i stpped Tysabri (cause going on Gilenya).... I am sooooooooooooo weak, fatigued, bla, I have only been out of bed an hour and need to lay down..
I HATE THIS, cant have energy drink that just gives me heart pulpatations,
Taake care and know you are not alone in this
Hugs

I'm sorry Dave that the ugly monster (fatigue) is back knocking at your door. I wish you well and hope you get back to yourself.

Dave, I understand your pain. Normally, I have to take a nap every day I'm so fatigued, nothing weird about that from what I read here at DS. However, for the past two days, I have not been able to get out of my bed I'm so darn tired. When I get out of bed I'm dizzy and nauseous and totally fatigued I head right back to bed and sleep it off. I'm going on my third day of this. Is this part of a relapse? This only happens once in a bleu moon me, but you seem to have it more often. Is your fatigue so bad that you can't get out of bed?

I hate the Fatigue I as well have been having it for the last couple of weeks more then normal.I slept last night a good 9 hours and here is is
12:00,and I an ready for a nap.I can do this on the days I dont work but the days I work.I cant hardly take a nap then..........Maybe they will figure they out something for you....Sorry to hear you are dealing with this .......The dr wanted me to start on Nuvigil for the fatigue.I just dont want to take another pill I am on so many now.Feel better soon
((((hugs)))))

Lynne,
this fatigue is always what seems to be the biggest part of my relapse and there are daays I can't get up and move, I can sleep an easy 16-18 hours and still nap. This time it has brought a friend my right pinky is numb and most of the right hand is tingly and it goes about halfway to the elbow. this is new and the first time it has started affecting the right side of my body as the only thing on the right side has been the shakes in my hand so I'm worried I think I will do a seperate post on which side is affected
Take Care everyone
Dave

I have heard people say Provigil and coffee help their fatigue. I you and the doc can find something that works.

Big ole BEAR hugs to you,
EP

Steroids can certainly help, yet have you considered another CRAB drug or even Tysabri? If Gilenya is not available for you, then one of these might be helpful. I suspect your doctor has suspended Gilenya treatments because of the death of a patient in December. Tysabri is another drug that has serious side effects, but the CRAB drugs being used for years now have proven to be relatively safe....NOT side-effect free....just safer. Often people complain of injection site reactions with the CRAB drugs...sometimes flu like symptoms. You may want to ask your doctor about other treatments like LDN. Good luck.