Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
I hate this. I hate the false sense of everything is ok when it's not. This disease is slowly changing me. So slow that it's almost unnoticeable to others but I can feel it. First, things are blurry but only at night, ok well, sometimes during the day too but it's not so bad. Then your muscles are twitching but only sometimes, ok well, your neck is kinda spastic and hurts any time you move it but it's not so bad. Then you can't pee but only if you forget to pee, ok well, who forgets to pee? Your abdomen is bloated, the muscles in a knot but it's not so bad. And you're waking up 6 or 7 times a night, ok well, at least you're sleeping so it's really not so bad. You've gained some weight because you don't do as much, ok well, you've gained a lot of weight but you can still GET around and do some stuff so it's not so bad. Everything, by itself, is minor, transitory and subtle but all together it becomes a problem. My problem. And I hate it.
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Usually I get a daily influx of emails on health topics. An article from Dr. Mercola really stood out recently though because it mentioned that fat cells have their own mitochondria. Not only was this the first I'd heard of this, he also mentioned that fat serves a purpose in our metabolism. Another new factoid for me. The bottom line for me was to appreciate that even our fat cells play a...
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I just do not feel well and I really think that it's because I cried yesterday on my way to work about my Aunt who is in the hospital. I don't think that we will have her much longer. She is very frail. Now she needs help eating. So, this is the third time in a year that I felt this way after crying. I think crying releases toxins into my body. I also worked up a sweat at the gym...
Who forgets to pee? People who have MS who don't realize that they have to go, eh? If you're able to void completely, just make it a point to watch the time and go ever 2-3 hours, whatever it is that works for your timing.
We do tend to experience this disease but we can still try to stay active, at least somewhat. Watching the diet helps too. I've managed to lose weight but go up and down sometimes.
So, yeah, I hate this disease too - you're not alone.
Gentle hugs, Linda
Whatever you're experieicing in your getting an MS dx, i.e., shock, denial, anxiety, anger, or even relief, keep in mind that these reactions are normal and that you are going to reexperience some variation of them whenever MS brings new symptoms and challenges into your life. The fact of the matter is that for the rest of your life you'll be wondering what your MS has in store for you. The anxiety that surrounds the unpredictability of MS typically begins long before the dx, when a person begins experiencing strange symtpoms and conditions until that person develops a strategy or mindset to deal with the unknown.
The trick seems to lie in finding a balance between taking each day as it comes and taking steps to protect your quality of life regardless of what the future brings.
I'm new to MS even though I suspect it's not new to me. Everyday is a different challenge.
You are not alone.