Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
My diagnosis is RRMS, just last week. There is numbness, weakness, fatigue, spacicity; and episodic symptoms of short duration.
Lumbar puncture shows 4 oligoclinal bands, though the MRI shows no [!] active lesions; one cloudy area that was there years ago.
The neuro suggested long-term and short-term treatment. He specified Rituxan,a not-yet-approved treatment that works on b-cells rather than T-cells in the blood.
I read up on MS, b-cells and Rituxan at the medical library and on the web sites for NIH and the named-site for Rituxan.
For the b-cell treatment there are tests mentioned in the peer-reviewed and NIH material: GAPDH and TPI, and MPS. Does anyone have any experience with Rituxan, b-cell treatment, or the three alphabet-named tests?
Lumbar puncture shows 4 oligoclinal bands, though the MRI shows no [!] active lesions; one cloudy area that was there years ago.
The neuro suggested long-term and short-term treatment. He specified Rituxan,a not-yet-approved treatment that works on b-cells rather than T-cells in the blood.
I read up on MS, b-cells and Rituxan at the medical library and on the web sites for NIH and the named-site for Rituxan.
For the b-cell treatment there are tests mentioned in the peer-reviewed and NIH material: GAPDH and TPI, and MPS. Does anyone have any experience with Rituxan, b-cell treatment, or the three alphabet-named tests?
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This isn't really bipolar related but there is never anyone on the parenting groups, this is the most active group I've been in.My 6yr old son has really bad seasonal allergies and they're in full force right now. He gets a terrible cough; he coughs all day and all night, making it hard for him to sleep, and his nose runs.I've tried every allergy medicine, OTC and RX, and none of them affect his...
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Is anyone here allergic to Sulfa that is currently taking Diamox? I have been diagnosed with IH now for almost 2 years. I am allergic to Sulfa drugs meaning that my throat will swell up so my Neurologist put me on Topamax. I was suffering from major loud whoosing noises and the topamax helped that but everyday I still hear those mainly between 6 - 12 pm. I am at my wits end and have not went...
I receive Rituxan infusions every three months for Devic's NMO. Yes, I have B Cell subset panels done every three months. Zero per cent is the desired goal for NMO patients. For Devic's, re-treatment is recommended once the CD 19's are at a level of one per cent. Unfortunately, many of us continue to relapse, some catastrophically.
Grace (Devic's NMO since 2005)