Multiple Sclerosis (MS) Support Group

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tarabunnyears 11/10/2013

I am the worst I have ever been.

I am in a bad relapse. Just finished a round of Solumedrol.

I am having esophageal spasms. So very painful. Also chest, neck, back, spasms. MS hugs too. It is as if my entire body is in spasm and the pain is unbearable. I am screaming and cannot take anymore.

Any suggestions? What helps you in muscle pain?

I have taken baclofen, Valium, and hydrocodien.

Heating pad... Massage... Nothing is helping.

I am at a loss and do not think the ER will help. Any ideas?

Please help.

Thanks,

Tara.
.

dsprt4help 11/10/2013

Can you call your Dr's office & talk to whoever is on call?

princessgwenda 11/10/2013

:( I'm soo sorry you're in such pains! Your neuro hasn't offered any stronger meds for pains??
When I had horrid pains from an ankle sprain years ago (I got another one last month/ same ankle) My neuro said that the "1 Hydrocodone 325/5, 2 or 3 fast relese tyelnoles and 1 Naproxen 500, 2 liquid Ibuprofens SHOULD help to have the pains somewhat bearable! Just take all those 6 pills ONLY every 6 HOURS WITH something in your stomach so you don't get them all tossed up!!"
I hope you find SOME help and I don't think they honestly will help much to have you go to the ER. I'm sorry!

ezone 11/10/2013

Have you talked with your neuro regarding a baclofen pump? If it is extreme stiffness that causes your pain, it may help. I do not know. I hope that your neuro can help but if you need help immediately, you can try the ER. It takes a good doctor to install a baclofen pump correctly.

Best of luck to you in finding answers. I hope you feel better soon.

marilyn4342 11/10/2013

Call your Neuro or go to the ER if it is after Doctor's office hours and you can't handle the pain. Good Luck! Let us know!

baywatchkelly 11/11/2013

I had the Baclofan Pump surgery. Now my pain is mostly manageable with oral meds. Next time I fill my pump they are going to put pain meds in too. I don't take oral baclofan anymore. I still take Tizanadine 3x day. I still am stiff. If I had no spasticity I won't stand. See a Pain Specialist.

ChrissyH 11/11/2013

Have u tried a Tens Machine? They're not expensive. My PT had recommended it one time when I was in a lot of pain. It really helped. If u don't know what they are ... Google it.

tarabunnyears 11/11/2013

Thank you all. Trying to get in touch with my neuro and get help. Taking all your ideas and suggestions too. Thank you guys.

deleted_user 11/11/2013

So sorry to hear you are having these problems. I sometimes use a cold bath or cold pool for symptoms. It feels horrible during, but has been a great help in the past. If you try, employ a helper.

mommies4 11/13/2013

I'm not sure if this will help or not but when I get to this point and can't take it any more I will take a Epsom Salt Bath and for the most part it actually helps some ! Hope you get relief soon !
FYI ~ Here's something I found ...

http://health.howstuffworks.com/skin-care/problems/treating/epsom-salt-baths.htm

Rincewind2702 11/14/2013

Hi Tara

When I have pain I mix Ibumol, Ibucod and Tensopain, I find that the combination of Ibuprofen, Paracetamol, Codien and Caffeine helps to take the edge of.

Hope you feel better soon.

HUGS

dxat59 11/14/2013

I know how you feel. I have had esophageal spasms since the early 1980's. They are VERY painful! Just don't panic and try to relax if possible. Sometimes changing positions helps or stretching your neck a little. Mine seems to always hit when I'm eating and the food gets stuck. I have never passed out. It can only go one of two ways. LOL I don't fight it. I hope your Doctor can help you and that it's a temporary thing for you.

Gentle hugs, Linda

mjideas 11/14/2013

I am sorry you are going thru this again. I can only offer you the same advice I've given before - a Baclofen pump discussion and trial with a skilled dr. Or try medicinal/smoking pot

A friend took amitriptiline for spasms in her diaphragm.

Ezone is correct that it takes an expert dr. to manage a Baclofen pump. I'm still adjusting and it's almost 6 months.

That is the state of the art treatment for severe spasticity.

Melanie

Keya0402 11/14/2013

I definitely can relate to your painMy neuro hasn't gotten back w/ me on pain meds, but 3 Advils seem to take the edge offHope you feel better hun;)

deleted_user 11/15/2013

My neuro had to refer me to a pain specialist. I've been seeing the pain specialist about 6 years now and still have pain almost daily. Every day is different and I have to try different things all the time. I do take morphine and other pain meds on a regular basis.

One thing that helps a lot is to lay down in a quiet room, play some very soft music for relaxation (spa type music), and spray myself with a mixture of peppermint, eucalyptus, and lavender essential oils mixed with water. Then I concentrate on deep breathing and relaxing.

I know it may sound too simple, but it usually helps at least take the edge off.

Good luck. I hope you get some relief.

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