Marfan Syndrome Support Group
Marfan syndrome is a connective tissue disorder characterized by unusually long limbs. The most serious conditions associated with Marfan syndrome primarily involve the cardiovascular system. Marfan syndrome may cause leakage of the mitral or aortic valves that control the flow of blood through the heart. This may produce shortness of breath, an irregular pulse, and undue...
Just looking for an opinion from someone who has the condition or someone knows a bit about
I think I might have Marfan's, I had a doctor suggest it, and i asked my cardiologist, he said I had the long fingers but not the heart issues, but he told me I had trace leakage in 2 of my heart valves. I'm 6'1 175lbs but look slim, really flexible, using my other hand I can bend my thumb competely to my wrist, and bend my fingers/toes back pretty far. Significantly near sighted (-4.5), severe pectus excavatum (haller index 5.8) that was repaired, osteoarthritis and slight degeneration of in vertebrae in my neck, and my arm span is longer than my height. When I was younger I had a large overbite and I had 8 teeth pulled due to overcrowding.
I think I might have Marfan's, I had a doctor suggest it, and i asked my cardiologist, he said I had the long fingers but not the heart issues, but he told me I had trace leakage in 2 of my heart valves. I'm 6'1 175lbs but look slim, really flexible, using my other hand I can bend my thumb competely to my wrist, and bend my fingers/toes back pretty far. Significantly near sighted (-4.5), severe pectus excavatum (haller index 5.8) that was repaired, osteoarthritis and slight degeneration of in vertebrae in my neck, and my arm span is longer than my height. When I was younger I had a large overbite and I had 8 teeth pulled due to overcrowding.
Best of luck!!!
acromegaly is mainly caused by a pituitary tumor