Hello, I'm almost 7 weeks post op from an Aortic Dissection I was blindsided by & almost died from. My Cardiothoracic surgeon told me I have a connective tissue disorder that accounts for it and believes it is Marfan's. I have not had anyone else diagnose me and am little surprised I guess. I had Pectus Excavatum (had surgery to correct it), hernia (surgery to correct it), cyst on my ovary (it ruptured), asthma (treating with meds), nearsighted (wear contacts or glasses), I'm skinny but not tall, am "double jointed" and have long, skinny fingers & toes so I seem to fit the profile. I wanted to know what others have experienced with Marfan's so I can maybe be prepared for what lies ahead. I was told to see a Rheumatologist and also wanted to know it that is how others got diagnosed as well. Thanks in advance for your help!
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