Lyme Disease Support Group
Lyme disease is the most common vector-borne disease in the Northern Hemisphere. It is now one of the fastest growing infectious diseases in the U.S. Lyme disease is caused by infection with the Borrelia burgdorferi bacteria, and is primarily transmitted to humans as well as dogs, horses and other domesticated animals by the bite of infected ticks.
Just kidding, I dont drink. I used to enjoy a glass of red wine occassionally, and sometimes even a moscow mule when I felt riskaay. But those days are behind me now. Drinking now would result in a flare up I want NOTHING to do with. Besides, I am already on a cocktail of antibiotics, it would be silly to put anything more poisoness into my body.
Anywho, I am here because I have Lyme, but let me give myself a proper introduction so that I am not seen as a crazy lady with so many emotions! My name is Alexandra, but Alex is fine. I am a latina, eldest of 5, and I am 25 years old. I was always very active, love making people laugh, and attended college to study nutrition and kinesiology. I was also a personal trainer and managed a 24/7 gym. My job included me taking clients on hikes on weekends to spice up our routine! Then slowly, I started experiencing fatigue... not able to take as many units...unable to handle a large workload (which meant no personal training) and I would often have the flu.
2015 was the year that I started to experience and deal with the Morgellons symptoms. It seemed almost over night that I started to feel this intense itching, burning, and bug like crawling on my skin. It drove me NUTS. Lice? Bed bugs? Vitamin defficiency? idk!? but the medical field made me feel crazier than I already felt... I was ashamed of what I was going through because no one seemed to believe me and I was making people uncomfortable with my paranoia of my sensations. I would shower at night when it felt the worst. Not that the showers helped, but it was my coping mechanism. I soon started to see fibers come out of my nails, and body. That's when I looked up things online and found morgellons. For so long I was confused because its such a controversial disease. and I was experiencing it.
anyway, I went to see a doctor who was located in SF and claims to help and treat morgellons. He ran lots of tests on me, and finally diagnosed me with Lyme, Babesios, and Bartonella... sorry about my spelling... there is no auto correct and my hands are getting crampy lol. He went on to explain what the morgellons sensation was and it made complete sense to me. It made me feel human again as strange as that sounds. I still deal with the morgellons, the fibers, and the bug crawling sensations... the sores. BUT I am on treatment now and finally dealing and addressing these health issues.
My Lyme symptoms include, but are NOT limited to,
fatigue
extreme muscle pain
shock feeling in the legs and feet
light sensativity
digestional issues IBS ect..
brain fog
HORRIBLE night sweats
hands will cramp up and stay cramped for awhile
JUST LOTS OF STUFF.. you get the point.
I am glad that there are forums out there for people like us who suffer this horrible disease. I hope that everyone suffering can awaken the warrior in themselves to fight this battle. We are WARRIORS on this battle field of health and controversy and we will prevail. sounds silly, but its better than not having any hope at all.
I still need lots of help, guidance, and research to do. Its overwhelming, dealing with disability, making ends meet, keeping up with family. I don't have any money to do the treatments that I want to try, but sharing your story and reaching out to others is FREE.
PEACE & LOVE from thatsickgirl
I hope you know that you're not alone, in fact there is at least one Daily Strength group for Morgellons also.
https://www.dailystrength.org/group/morgellons-disease
(I don't believe I have Morgellons myself but it attracted my attention because of the overlap between it and numerous other conditions, both in symptoms and in bacteria, I may well have ME/CFS or Lyme Disease, but I don't know if I could get my doctors to take either one seriously. I'm currently trying to get my skin infections treated and hoping that other benefits might come from the antibiotics if I'm lucky).
I think you might be very lucky to have found a doctor who will take Morgellons seriously, but I hope they are using antibiotics so as to get the best use out of them.
(I have some posts to the Morgellons forum that try to look at the possibility of fungal infection joining in with bacteria in Morgellons. I'm still just speculating, but it's still the most sensible picture I can come up with for that very strange and confusing condition, that there might be fungal infection present in lesions and fibers that often gets overlooked, that may make some very surprising contributions to the condition).