Lupus Support Group

Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.

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Muscles & Bones
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Supplements & The Confusion Associated With

kitty3
kitty3
Up until the last 4 to 6 months I had finally got myself to such a fantastic place that I felt on top of the world. I have since been major knocked off that great place & it's always bothering & angering me. I was proud of the fact that I hardly ever had problems with joint and/or muscle pain.
That is one of the things that has changed. In my constant wonderings about what I could be doing wrong I've seriously started wondering if it could be something as simple as my supplements. I do take a good quality multi + daily bone builder but could it be with lupus I maybe need extra above whats considered the "norm".
Is there anyone in the group that can give me their thoughts or experience as to my maybe needing a B vitamin on top of my multi. Please feel free to share any vitamin and/or mineral plan that you feel has benefited you. I'm looking forward to hearing what you have to share.
deleted_user
deleted_user
Hi Kitty,

I get a B12 shot once a month, take Caltrate, Vit C, Folic acid, Cod liver oil and my Rheumy advised higher doses of Vit. D. The extra Calcium and Vit D are very important. The B12 shot helps with my low energy level because of the pain and fatigue.
Take Care
Sylvie
deleted_user
deleted_user
awwwww Kitty3,"""I SYMPTHIZE WITH YOU, I felt the same way, I was on top of the world,( i seen many improvments in my health and even some of my symptoms went away..... I was on a very healthy eating plan,nuts/seeds,whole grains, organic fruits and veggies(carrots, are especially good for lupus),salmon, and herbal supplements and vitamins, no meds for almost 5 years , well I stopped taking them and I bottomed out ! , the reason I spotted, I could no longer afford to see my dr/ herblist, my medical card will NOT cover office visits...
.Folic acid , dhea, fish oil, vit D'' I think everyone is defficent''...
Ginseng, works well for me, gives me alittle bit of energy...
liquid B-12.... also i was drinking ''goji juice''', worked really well in cutting down on my aches & pain, also inflammation...I used pure organic coconut oil, in my food and on my skin and hair....
just a few things I have taken and I'am taking now.... HUGS & PRAYERS, Jobbie
brunob
brunob
I take something from my homeopath to support my adrenals, because with all the meds we are on they really take a beating. I also take an herbal remedy for my lungs, probiotics and digestive enzymes and calcium and vit d.
I sometimes take others depending on symptoms and time of year. I sometimes take a b vit complex for a couple of weeks if I am feeling run down.

Good luck and let us know how you do.
deleted_user
deleted_user
I take a mega B complex, its really good. Pure Synergy is my vitamins-whole food style; love the stuff. Flax seeds are part of my diet. When my tissues feel inflammed, I turn to my cel salts (ferrum phos) for relief. I think my acupuncture has probably helped me more than anything else. I was very strict with my diet and supplements and it seemed like the same thing happened to me. I've swayed from the diet now but will return. Sometimes I think this disease rears it's ugly head for no reason what so ever sometimes. Hope you feel better real soon.
bunny103
bunny103
I take a B12 shot once a week , my stomach does not absorb it and I also take a maximum amount of fish oil, that has helped alot on my joints
deleted_user
deleted_user
Have any of you ever had your B-12 levels checked? Just curious to see what they might be. Mine can go pretty low.
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