Lupus Support Group

Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.

912 Members

7,373 Posts

0 Online

kitty3 01/21/2011

Up until the last 4 to 6 months I had finally got myself to such a fantastic place that I felt on top of the world. I have since been major knocked off that great place & it's always bothering & angering me. I was proud of the fact that I hardly ever had problems with joint and/or muscle pain.
That is one of the things that has changed. In my constant wonderings about what I could be doing wrong I've seriously started wondering if it could be something as simple as my supplements. I do take a good quality multi + daily bone builder but could it be with lupus I maybe need extra above whats considered the "norm".
Is there anyone in the group that can give me their thoughts or experience as to my maybe needing a B vitamin on top of my multi. Please feel free to share any vitamin and/or mineral plan that you feel has benefited you. I'm looking forward to hearing what you have to share.

deleted_user 01/21/2011

Hi Kitty,

I get a B12 shot once a month, take Caltrate, Vit C, Folic acid, Cod liver oil and my Rheumy advised higher doses of Vit. D. The extra Calcium and Vit D are very important. The B12 shot helps with my low energy level because of the pain and fatigue.
Take Care
Sylvie

deleted_user 01/21/2011

awwwww Kitty3,"""I SYMPTHIZE WITH YOU, I felt the same way, I was on top of the world,( i seen many improvments in my health and even some of my symptoms went away..... I was on a very healthy eating plan,nuts/seeds,whole grains, organic fruits and veggies(carrots, are especially good for lupus),salmon, and herbal supplements and vitamins, no meds for almost 5 years , well I stopped taking them and I bottomed out ! , the reason I spotted, I could no longer afford to see my dr/ herblist, my medical card will NOT cover office visits...
.Folic acid , dhea, fish oil, vit D'' I think everyone is defficent''...
Ginseng, works well for me, gives me alittle bit of energy...
liquid B-12.... also i was drinking ''goji juice''', worked really well in cutting down on my aches & pain, also inflammation...I used pure organic coconut oil, in my food and on my skin and hair....
just a few things I have taken and I'am taking now.... HUGS & PRAYERS, Jobbie

brunob 01/21/2011

I take something from my homeopath to support my adrenals, because with all the meds we are on they really take a beating. I also take an herbal remedy for my lungs, probiotics and digestive enzymes and calcium and vit d.
I sometimes take others depending on symptoms and time of year. I sometimes take a b vit complex for a couple of weeks if I am feeling run down.

Good luck and let us know how you do.

deleted_user 01/21/2011

I take a mega B complex, its really good. Pure Synergy is my vitamins-whole food style; love the stuff. Flax seeds are part of my diet. When my tissues feel inflammed, I turn to my cel salts (ferrum phos) for relief. I think my acupuncture has probably helped me more than anything else. I was very strict with my diet and supplements and it seemed like the same thing happened to me. I've swayed from the diet now but will return. Sometimes I think this disease rears it's ugly head for no reason what so ever sometimes. Hope you feel better real soon.

bunny103 01/21/2011

I take a B12 shot once a week , my stomach does not absorb it and I also take a maximum amount of fish oil, that has helped alot on my joints

deleted_user 01/21/2011

Have any of you ever had your B-12 levels checked? Just curious to see what they might be. Mine can go pretty low.

Join the Conversation