Lupus Support Group
Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.
I really wonder sometimes if, or maybe I shd say how many other lupies, get really frustrated as I do when it's like the mind and the body can't seem to get their act together on getting things done be it around the house or any number of little things on a To Do List in life.
It's almost like the mind is running & waiting to get going & get life moving & the body just can't get into gear. Or even the other way around. Either way the two are not speaking the same language all the time.
I guess I find it frustrating cause for me I can't even blame it on any physical pain or discomfort or any such issue. It's almost like there's just something missing that body & mind are not connecting properly. It's sort of like I could sit on my loveseat & just stare into space & not really concentrate on anything concrete or maybe I shd say & not really have to think period.
As I now post this I'm wondering if this is all part of the Lupus Brain Fog thing or shd I just look in a mirror & give myself a talking to for getting too lazy!!!!
I shd note too that it doesn't really feel like a brain fog type of thing but then again who knows maybe this covers the fog thing too.
Anyone who might be checking this out - do you think some kind of written To Do type list would maybe be a benefit here. Or better still if anyone has any personal ideas that work for you let me know. I'm game to hear any and all.
It's almost like the mind is running & waiting to get going & get life moving & the body just can't get into gear. Or even the other way around. Either way the two are not speaking the same language all the time.
I guess I find it frustrating cause for me I can't even blame it on any physical pain or discomfort or any such issue. It's almost like there's just something missing that body & mind are not connecting properly. It's sort of like I could sit on my loveseat & just stare into space & not really concentrate on anything concrete or maybe I shd say & not really have to think period.
As I now post this I'm wondering if this is all part of the Lupus Brain Fog thing or shd I just look in a mirror & give myself a talking to for getting too lazy!!!!
I shd note too that it doesn't really feel like a brain fog type of thing but then again who knows maybe this covers the fog thing too.
Anyone who might be checking this out - do you think some kind of written To Do type list would maybe be a benefit here. Or better still if anyone has any personal ideas that work for you let me know. I'm game to hear any and all.
I think you're on to something here. My brain feels active but my body is run down completely. It's horrible.
Sometimes when you feel badly it's easy to get overwhelmed and not want to do anything at all.
I have made my life into a pretty structured routine because I swear, I wouldn't get anything done otherwise. I forget things sometimes-- for important things I write them down. I have an appointment book that I put even the most mundane things into so that I won't forget. I have alarms set on my phone throughout the day to get up, take meds, get my son off the bus, etc... Things I absolutely can't forget.
There's nothing wrong with sitting on the loveseat and tuning out sometimes. Sometimes you need time for your body AND mind to rest.
Take care!
I definitely know what you are talking about. I sometimes get up on a Saturday and make a list of things to be done, and some days, I find that I only get a few done because I get so tired. However, I consider getting even a few things done positive. But yes, sometimes the body just is not up to what the mind has planned. Since I often don't know if I am going to have good day or not at the start, I just do what I can, and leave what I cannot do for another day. However, I know that everyone cannot do that.
Michkeys
One thing I do not think is that you are lazy. Just my experience meeting lots of different people with lupus, but it seems like we are all overachievers. When I was first dx'ed I actually read an interesting article about perfection seekers and AI disease. It was enough to allow me to let go of trying to be the perfect, mom, wife, friend, worker, clean house, etc. I have a lot more work to do, but I do find that is helping also. My best wishes to you, Kim
I do think I know what you are talking about though. For me, I struggle with this, but always ask myself what is my #1 priority for the day, and do that first, otherwise, you know how it goes.
One other thing a wise dean once taught me ... schedule your tasks around your highs and lows. If you feel sharpest mentally from 8-11 am, that's when you schedule your complicated mental tasks. If you feel like moving around in the afternoons usually, that's whey you plan to clean, and so on. If you are always dragging around dinner time, put it in the crockpot earlier in the day when you feel livlier. That has really helped me!
That's why you'll find me in my pjs, working on paperwork from 9-1 (from the boost of coffee) and then when I feel the 1:00 drowsies coming on, I'll do something physical, like shower or style my hair and that sometimes revives the drowsies. Or a walk or something. I guess we can structure our tasks around how we feel to get the most out of our day.