Lupus Support Group
Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.
kitty3
Somehow after the several years I've had Lupus I'd think there be some things I'd know for sure yet alas I still remain confused.
I wonder if there's anyone else that gets confused between a flu/bug and a flare.
I've been feeling extreme fatigue, listlessness, that sort of feeling like a flu/cold bug is sneaking up on you but it hasn't come to being yet, sort of achy, etc. etc., but no fever at all. It's been off & on for abt 2 wks now, I'd feel good for a few days then bad for a few days, really off & on. I had spent one blistering hot day at the beginning of Aug outside at a horse show & but I was totally covered.
Oh yea, back in June my rheumy had told me that he considered me abt 95% in remission so to me this makes it even more confusing.
I'm just really interested in anyone's thoughts on this.
I wonder if there's anyone else that gets confused between a flu/bug and a flare.
I've been feeling extreme fatigue, listlessness, that sort of feeling like a flu/cold bug is sneaking up on you but it hasn't come to being yet, sort of achy, etc. etc., but no fever at all. It's been off & on for abt 2 wks now, I'd feel good for a few days then bad for a few days, really off & on. I had spent one blistering hot day at the beginning of Aug outside at a horse show & but I was totally covered.
Oh yea, back in June my rheumy had told me that he considered me abt 95% in remission so to me this makes it even more confusing.
I'm just really interested in anyone's thoughts on this.
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Another question to ask yourself: have you been around anyone who has the flu or a virus? (FYI, the flu IS a virus, but not all viruses are the flu. Chicken pox is a virus, for example, but not a flu.) If you haven't been around anyone who is sick then it's unlikely that you have a virus or the flu; they don't come out of the blue; you have to catch them from someone.
Don't feel stupid for not being able to tell the difference. It's hard for almost everyone to tell the difference between a flu and a flare. Flu often comes with stomach upset which flares don't (unless you have something overlapping like Crohn's). Flus are viruses. And depending on which virus you have, you can have different symptoms. After you've had lupus for a while, you'll get to recognize your body and the way it acts in a flare.
Blood work can be helpful in differentiating. Usually (and I use that word cautiously), white count elevates with the flu (or a virus), but does NOT with a flare. Both a flare and the flu can cause elevated sed rate and CRP. Also, respiratory symptoms mean it's the flu and not lupus. And stomach and colon symptoms.
In serious cases, docs may do a spinal tap (lumbar puncture) to look at the fluid.
And not to confuse things even more, a case of the flu can CAUSE a flare. So you might have started with the flu and moved in to a flare.
Now, I'd like to add my two cents about your rheumy saying you were about 95% in remission. I hate when docs use the term "remission" because people think it's like a cancer "remission". It's not. Cancer remission occurs when the docs search and find no sign of cancer based on scans and blood tests. So what do docs who make such statements base their statement on? Nothing. If you don't seem to be having symptoms, then you're "in remission." And that makes patients thing they can go out and do things (like be outside in the blistering heat--what were you thinking? Bad girl!). I prefer that docs use the term that the disease is "quiet". That reminds patients that it can be WOKEN UP if you aren't careful. Lupus does not ever truly go away. It can be quiet for a month or 20 years, but it always comes back. But when docs say things like "you're in remission", it makes patients believe that they're "cured". No one gets cured of this right now; maybe one day, but for now, the disease is just QUIET.
Out of curiosity, when your doc said this, did you have normal complement levels? Normal sed rate and C-RP? Normal antibody titres? Were you feeling 100% yourself when he said that? (If you weren't, that should tell you something about his statement. And yes, I know how much we all WANT TO HEAR THAT, but just because the doc says it, doesn't make it the truth.)
Sometimes, docs just really irritate me....[g]
Tracy