Lupus Support Group
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nausea
Tired - fatigue - lethargic
Sore Muscles (bilateral - neck, shoulders, thighs)
Sore joints (jaw, knees, ankles, hips, thumb, knuckles, Top spine)
Tooth Pain
headaches - Migraines,
Vision - double (tired, has to focus to not double)
Anxious - Sleepless nights filled with worry
Rapid mood swings
HARD heart beat - with nauseous and light headed , feel blood pumping though veins in chest (some times rapid)
IBS
Glands (above hair line neck - left always swollen, right comes and goes)
losing hair
Muscle twitching (stomach, body twitches)
Tingling/numbness hands feet (been a while)
Left leg "goes out" won't bear weight causing fall
Boyle/large pimple like sores on rear and thighs
Red dots on skin come and go (tiny blood blisters)
Lots of neck pain (radiates into arms)
Skin - Dry, hands cracking
face in the last year has been getting more red (Faint butterfly rash)
Dry mouth at night (craves water to cure dryness)
Dry eyes (contacts tough to remove)
Night sweats
Memory - Brain fog (finding words), Difficulty concentrating , what did I come here to get, real memory problems
eyes - itch, photo-sensitivity
Breathing - Pain with deep breaths
Claustrophobic
Reduced sex drive
Depression
Bruises easy
Oh nelly it will be an interesting appointment.
Sending Peace,Love, and Good Health to Your Wife and You
So he came in, asked for the blood work results, glanced at them, literally, 1 second, then asked her some questions. Did a physical exam, asked a couple more questions and filled out lab work request form. Never did he ask if there was anything else we wanted to talk about. Tracy asked, if that was it, what did he think.
He said well your tenderness is typical of Fibro let me get you a brochure, and he ran out of the office. when he returned he handed it to her said get the blood work done and return in 2 weeks. He turned to the door and bolted... HOLD ON! There are other concerns we have here in addition to that which you asked about ... so I quickly hit a few of the items on the list we made. He seemed put off that we wanted to talk more, but listened. When I mentioned Sores or her rear, additional detail about her memory and her tooth pain, he perked up, examined her sores (or the scars of old since there are not any currently there) and ordered a couple more blood tests and made additional notes in the chart.
Here is a list of tests he ordered:
Hepatic function panel
UA, complete reflex to culture
Ccp ab igg
Complete c3c, c4c
Ana ifa w/reflexes
Anti-dsdna, rfx, tither
Ra diag panel
Sed rate by mod west
Crp
Celiac disease panel
Inflammatory bowel disease panel
The Dx code on the test form was for:
Other and unspecified nonspecific immunological findings
So Tracy is getting the blood drawn now. She says today is one of the worst days she has had in a while (so if it is a flare, we may get the antibody tests to show that). I asked her to be sure the results are sent to the ordering doctor and her Primary Care doctor so that we can get a copy easily to take to the other Rhumey we have an appointment with at the end of March.
For the appointment in 2 weeks I will bring a print out of the symptom list and give that to him to look over. That way he will not have to talk, until he has questions about the list.
This is why we gave up after they ruled out MS ... Doctors suck!
The plan going forward
Glad you all made it to the appt... i SO understand how frustrating it is when you feel as though you are not getting the appropriate time you deserve to voice your concerns and questions! It does sound like he ran an informative panel of tests, which is good. When will the tests be ready? Surely before 2 weeks? I have found that most labs.. well .. at least through Quest Diagnostics are completed within 24 - 48 hours.. they have a fast turnaround time. I always call the lab direct a couple of days after taking the tests to see if the labs are in yet.. of course the labs cannot reveal your results, but they can at least let you know when they have been completed =) . I have learned that you have to be very bold and direct with these doctors, really. I would ask to come in for a sooner appt - as soon as you know the labs have been completed and the results have been received by the ordering doctors' office. Good luck to you.. I really hope these lab results will be a step in the right direction!!
Jennifer